Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Happy birthday Rozza and Mich!

Yep, I've been having crazy dreams since the start of chemo.
 

Davia, do you mean the white cell booster injections? I think you don't need them on paxo as it's not so hard on your immune system. I'm going for round number 11 of paxo today and my white cell count has stayed in range throughout.

Feeling better thanks ladies, I just hate being sick, I'm such a baby! Only had one slice of toast yesterday so feeling a bit peckish now!

x

Happy birthday Roz and Mich,

The Look Good Feel Better workshop was good and I came away with a large bag of freebies. We all had to take off our make up and was shown how to apply it including eyebrows and eye liner. We were told false eyelashes were not adviced whilst going through chemo because of the weight of the false lashes and the glue could react to the chemo chemicals. By the time they showed you how to apply the eyeshadow, liner and mascara the lashes didn't notice. We also got a bottle of perfume, moisturizer, lipsticks, blushers, eyeshadows and loads more. They were all good makes so well worth going to. 

Stay well ladies,

Love to you all,

Sue xx

Glad your feeling better Clair. 

It was the white cell boosting injections, I had a dip in my white cells on my first paxo carbo so couldn't have my second dose of paxo, but the cells picked up quite quickly so maybe that's why no need for injections like you say. 

Sue, the look good feel good day sounds great, will have to book myself a space on there, and very good advice on the false lashes, you pick up so many bits of info along the way don't you, I was also told not to wear under arm deodorant with aluminium in it, have any of you heard or been told this?

Well second day after paxo and feeling OK so fingers crossed  

Have a good day ladies 

Xxx

Sue that sounds great. I'm so lazy with make up.

Davia so interesting you were told that about deodorant. I've heard it a lot but usually from alternative therapists, never from someone in the medical field. I switched deodorants about 4 weeks ago and the one I use is very good.

x

Clair what one do you use? I find mine OK but it could do better. Xx

I use earth conscious which I order from babipur. It's not cheap but I suspect none of them are.

x

Thanks Claire I'll have a look and give it a go xx

Hey Sue,

Ah that workshop sounds great, just what you needed.  I have the details so will call so book on the next one tomorrow ;)

Glad you are doing better Claire, hopefully more than toast today.  I'm going through a smoothie phase at the moment!

I need to get different deodorant too, since starting treatment I've been too freaked out to wear roll on lol!  I see there are quite a few options on the market , I'll have a look at the babipur. 

No aches and pains today yay!

Hope you all well.

xx

Hey Sue, 

How you doing? Is it your taxol today? 

I'm OK, just a bit of pain in my right arm. Had my pre assessment this morning so all ready for Tuesday. 

Hope you are all keeping well ladies. 

Xx

Hi Mich

Yes I'm having Taxol now. It takes 3 hours and I was petrified but all ok so far.

How's your hair? I now wear a wig to go out. I've lost about 50% but my hair is very thin and bald on the crown. I'm still having the cold cap with the hope that I don't lose any more.

I hope everyone is well. Stay strong ladies

Love to you all,

Sue xx

Hi Mich

Yes I'm having Taxol now. It takes 3 hours and I was petrified but all ok so far.

How's your hair? I now wear a wig to go out. I've lost about 50% but my hair is very thin and bald on the crown. I'm still having the cold cap with the hope that I don't lose any more.

I hope everyone is well. Stay strong ladies

Love to you all,

Sue xx

Hey Sue, 

Gosh that is a while and still the hour and half afterwards with cap? 

Still sporting the bald patch but can hide with headband. Cold cap was rather painful last time, I'm goimg to ask them to put it one when it's starting up, the 30bmin time then at least it's gradual rather than ice cream brain freeze. Do you have it on earlier or only when ready?

Are u having weekly taxol? Not sure if I should continue as weekly will be a err headache lol! 

Hope you don't have any strange side effects and can relax this weekend 

Xx

Wow 3 hours is a long time, my paxo was always an hour.  The meds they gave me before always made me so sleepy 3 hrs would have been quite good for a long nap :)

Had my last paxo Tuesday. Don't know if you ladies have been following what's been going on in Hong Kong but I was really quite worried I wouldn't be able to get to the clinic but all ok in the end.

Heart mri next week before starting the adriamycin combo the following week which I'm quite worried about.

Hope everyone is ok.

x

Hi. Ladies,

Sorry if you get this twice but I was in the middle of typing and my message disappeared.

Mich, my Taxol is 2 weekly and a high dose. There was a lady having weekly Taxol and she seemed to be in and out. I don't have the cold cap until it's ready as an extra 2 1/2 hours on top of the 3 is too much for me also they faff around once it's ready and don't start the chemo straight away. You need to do what's best for you.

Claire, I have been watching all abou Hong Kong on the news, it looks horrendous and was wondering if you were affected in any way. I haven't heard of your next chemo but I'm sure it won't be as bad as you fear.

I hope everyone has a fantastic weekend, weather permitting.

Love and hugs,

Sue xx

Hey ladies,

I'm glad you are ok Clare and got to your treatment.  Yeah all very scary whats going on there, its been happening for quite a few months now!

I have my last EC dose on Tuesday. You'll be fine, just remember to take your anti sickness meds.  I struggled the first time but much better now they upped my pre treatment meds.  I now take anti sickness meds for the next few days after treament, even when i dont feel too nauseous as it keeps at bay.  The nurse also advised to eat regulary and small amounts and not to get hungry.  Mistake i made the first dose,  i didn't eat while having the treatment and then only ate much later in the eve and got violently sick. I do feel like i've had a heavy night for a few days so mostly just sleep.  I had the heart mri before i started and then blood tests before each treatment. 

Thanks Sue, yeah I'll see what i do on Tuesday, might set it up myself lol! As you say it takes a while and they have quite a bit to sort out with drugs etc 

Hope you are all well and had a good weekend.  

xx

I'll be thinking of you today Mich, let me know how you get on.

Hugs,

Sue xx

Aww thanks Sue, just finished just thawing out now. Last Ec yay! 

Sunshine here, let's hope its lasts.

Hope you are well today. Fingers crossed for me later. 

Xx

Hi Ladies, hope its all going well, Mitch half way Mark, are you  paxo and carbo next? I am on number 2 paxo carbo, had mine yesterday, it takes a bit longer to infuse but you can have a good doze and catch up on ipad, i have noticed my hair is definitely growing back, very slow but there is growth and my nails are growing to, your right about the sickness tablets, I set my alarm and take them before I feel sick for the first week, then maybe drop the early 6am one off and gradually come off the others only having one if I feel sick, I've found the paxo carbo different to the EC it doesn't nock you out as much but it has upset my tummy in the lower region, I had to have a week off to allow it to heal before my second dose of Pax and Carb and the oncologist reduced my dose 20% so I'm really hoping it behaves this time. I also have paxo once a week, it's a pain having to go but apparently it's better tolerated, but some people have no issues at all with it, we're all different, my weakest part is my bowel so thats most probably why it hit there hard.

Keep well and rest when you need to, it helps, I over did it on Saturday and boy did I know Sunday, really tearful, 

Love to you all xxx

Hi Davia,

I had my first Paxo chemo Friday and I'm not tolerating it as well as EC. It's been really harsh on my stomach and I'm exhausted. I'm hoping it's just a glip. 

It's reassuring to know that your hair is slowly growing back. My hair is really thin now and looks awful.

Take good care,

Sue xx

Hi sue

Really hope your better soon, it was really harsh on me to, the oncologist reduced it, so hopefully it's kinder this time, maybe they can do the same for your next dose, I had a week off to so it could heal. Are you having pax weekly? It's a pain going into the hospital all the time but maybe better.

I'm also trying to limit acid food like fruit to see if that helps, fingers crossed it easier this time. Wishing your turned the corner soon and feeling better xxxxxx

Hi Davia,

I'm having chemo fortnightly, I'm seeing the Oncologist next week. Have you any more treatment planned? 

Xx