Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hello Mich 

Thanks for reply x I'm on my first cycle of carbo/paxo I have paxo weekly, I couldn't have my second week's paxo as white count to low, but they say this is very common and most people miss the second dose of paxo, the difference with me was the bowel movements, and (wait for it) the colour it goes yellow and I had like period pains for first week, oh also I have small spots on my face, but nothing bad, I'm in on Monday for my paxo so will let you know how I feel after. The thing I can't stand are my emotions, I get like hormonal tears ill start for nothing, it's embarrassing, neighbour was being so nice the other day and bang, they they were

Like you I have to have op, they haven't really discussed what but I know lymphs will come out and I feel mastectomy to but I try not to think that far ahead, like you say, little steps, everyone who I know that has been through this say after chemo, surgery is a doddle.

I had my bracca test done at guys, they actually phoned me with the results, I found out before the oncology team, where did you have your test done?

Oh what is EC? I had epirubicin and another drug can't remember what it was now, is that EC, sorry

The last cycle hit me hard, but I know it effects people differently, Im hoping this paxo and carpo are kinder to me, I also feel like I'm on drugs, like spaced, but then I suppose we, are, they have just taken out the happy stuff

Keep well xx

Hi Davia

Gosh sounds like a real mixed bag there! Err yellow lol!  I'm doing my best to keep bowel movements err moving at the mo, the EC is playing havoc on me.  Yeah thats right i've just googled it its epirubicin. cyclophosphamide. I was quite rough 2nd dose in feeling drunk and lightheaded for a week but this time around i seem ok so hope it stays that way when i start my injections tomorrow.

Do you need to take injections with the carbo / paxo combo?

Yeah went through to Guys, had the telephone consultation and then did the blood tests at local hospital and sent them off.  They said an 8 week wait, been about 4 weeks now so just wait and see.  But at the moment like you and the rest of us I'm just focused on getting through each week and a sense of normality.

Hope you do start to feel better this weekend.

Have a fab weekend ladies, batten down the hatches its gonna get breezy ere tomorrow!  Well in the south east at least!

xx

Ladies I've had very little trouble with carbo and paxo so hopefully it'll be the same for you. I have paxo weekly and it really doesn't affect me at all. Carbo every 3 weeks and that makes me feel nauseous for a few days but that's all. I'm tired but as mentioned previously, I have an 11 month old that doesn't sleep! No white cell boosters with carbo/ paxo. My red cell count was a bit low this week so they've given me iron supplements.

Have a good weekend all x

Ladies I've had very little trouble with carbo and paxo so hopefully it'll be the same for you. I have paxo weekly and it really doesn't affect me at all. Carbo every 3 weeks and that makes me feel nauseous for a few days but that's all. I'm tired but as mentioned previously, I have an 11 month old that doesn't sleep! No white cell boosters with carbo/ paxo. My red cell count was a bit low this week so they've given me iron supplements.

Have a good weekend all x