Hi Claire,

Welcome back. I have to wait 2 - 3 months for the brca results although it is marked urgent with the hope of getting the results before I need the surgery. I am not working as I was made redundant from my job at the same time I was diagnosed with cancer. It never rains .....

How are you feeling Mich? Did you manage to continue with the cold cap? This all feels like groundhog day to me, every day is the same. I have a friend coming round today which will be nice but I feel I need my life back. 

Roz, How are you doing now? Are you back on alcohol? I miss the social side of drinking but the thought of it makes me heave.

Lots of love to you all,

Sue xx

Hello ladies, hope you don't mind me gatecrashing your thread, but I've just read through it all and it's made me feel so much better, your all so nice and posative

I was diagnosed with triple negative BC in June, I am on my 5 of 8 cycles of chemo, these last four being Carpoplatin and paxataxil, there breaking down the paxataxil to every week, i have my last chemo on 6th January and although we shouldn't wish our lives away, I can't wait, after that it will be surgery and radiotherapy, I have three lymph nodes under my arm and two lymphs under breast, but on last scan the two under breast have cleared, I'd like to ask if any of you on paxataxil oy carboplatin have had fuzzy head, I can't explain it but fuzzy slight dizzy head, I'm at day 10, my other cycle I felt so much better by day 10, it's not really bad but just annoying as I can't drive while feeling like this. Again lovely to read all your posts and really hoping your all feeling well, xxx

Hi Davia, welcome.

I've just finished my EC chemo and haven't started on taxol. I'm still a little dizzy from Friday's chemo but it's getting less. Good news that some of the lymph nodes are now clear. I hope your dizzyness goes soon.

All the best,

Sue

Hi Sue 

Thanks for reply, how many cycles are you having? Hope your dizziness clears soon, I found every cycle was a little different but the fatigue was the same, I did what they say do and listened to my body so when tired I sleep, how people get on with looking after children and working is beyond me.

Oh I had the braca test it took three months to come through, but they did say that if its urgent they can get result in three weeks, mine was negative.

I know exactly how you feel when you say you want your life back, I have that thought every day, it's frustrating isn't it, but I keep telling myself, this chemo is not forever, I shouldn't but I'm counting the days down to the 6th Jan, my last chemo

Take care, xx

Hey Claire,

Welcome back! I'm glad you are doing ok and have your opp planned.  Its nice you have your mum here for support too :)  I'm off work now, well they have signed me off for 6 months, if i do want to work they are fine with it and will add to my leave so just need to see how I feel.

Sorry to hear you are not feeling well Sue, that sounds like me on my 2nd session.  I was well rough for a week like zombie mode but luckily no sickness.  Tuesday went well, i felt rough that night and last night but feeling much better today, hope it stays that way. I do stuggle a bit with the injections well the pain in my bones so need to make sure i dose up on paracetamol.

Hugs all around,

xxx

Hey Davia

Of course not, welcome to our group that no ones want to join haha!  I was diagnosed in August so just had my 3rd course on Tuesday.  Not feeling too bad at the moment, fingers crossed it stays that way.  I have 1 more of EC then i go onto the carbo / paxo and paxo weekly.  Hope there are no major side affects of these.  How you doing on these drugs, just the dizzyness.  

I have in my lymph nodes too so will have to have all of them out, little worried about the opp but one day at a time eh.  I'm also waiting on my brca test, guess they will send a letter confirming yay or nay.

Yeah i could drive for a few days after my second one, felt like i was on drugs all week!

I managed the cold cap on Tuesday, but hair is thinning quite a bit so not sure if I'll carry on .

Hugs

xx

Hey [@JinxB]‍ 

How you doing? Hope your consultant appointment went well.

xx

Hello Mich 

Thanks for reply x I'm on my first cycle of carbo/paxo I have paxo weekly, I couldn't have my second week's paxo as white count to low, but they say this is very common and most people miss the second dose of paxo, the difference with me was the bowel movements, and (wait for it) the colour it goes yellow and I had like period pains for first week, oh also I have small spots on my face, but nothing bad, I'm in on Monday for my paxo so will let you know how I feel after. The thing I can't stand are my emotions, I get like hormonal tears ill start for nothing, it's embarrassing, neighbour was being so nice the other day and bang, they they were

Like you I have to have op, they haven't really discussed what but I know lymphs will come out and I feel mastectomy to but I try not to think that far ahead, like you say, little steps, everyone who I know that has been through this say after chemo, surgery is a doddle.

I had my bracca test done at guys, they actually phoned me with the results, I found out before the oncology team, where did you have your test done?

Oh what is EC? I had epirubicin and another drug can't remember what it was now, is that EC, sorry

The last cycle hit me hard, but I know it effects people differently, Im hoping this paxo and carpo are kinder to me, I also feel like I'm on drugs, like spaced, but then I suppose we, are, they have just taken out the happy stuff

Keep well xx

Ladies I've had very little trouble with carbo and paxo so hopefully it'll be the same for you. I have paxo weekly and it really doesn't affect me at all. Carbo every 3 weeks and that makes me feel nauseous for a few days but that's all. I'm tired but as mentioned previously, I have an 11 month old that doesn't sleep! No white cell boosters with carbo/ paxo. My red cell count was a bit low this week so they've given me iron supplements.

Have a good weekend all x