HI, yes I have all the same feelings and mixed emotions. I am having my first chemo session today and am terrified. I was supposed to be going in at 8.30am but I got a call yesterday putting my appointment back to 11.30am as they haven't got approval yet even though I have already signed the consent form. I am praying that my chemo doesn't get delayed. 

It is really hard to stay positive but I am really trying. Good luck with everything, have you got a start date for your treatment? I found that the hardest bit, waiting for my appointment and praying nothing gets any worse whilst waiting. 

Hi SueBea

Urgh I'm not very clever I've just typed a message to you and did something wrong when sending and lost it, doh! I'll blame movement of the train! 

Thanks for your reply a d good to know we all have these mixed emotions. At the moment it feels like it's not me a d was someone else they were talking about. As I don't feel ill and haven't had any letters etc. I was diagnosed on Tuesday so early days still. Think they said chemo in about 4 weeks. 

Aww sorry your appointment has been moved, I hope they don't keep you waiting too long. Good luck for today, I'll be there soon needing some encouragement.

Mich x

I’m in the same boat as you, triple negative but just had my third treatment. Unfortunately I have lost my hair, it was thin to start with so I made the decision to not even try the cold cap. I don’t know if it helps but I’m Kent based and just had my progress ultrasound, not seeing the consultant for another week or so though so hopefully they’ll book you in soon. Have you found anything to help with the headaches if you are getting any? 

Hi Mich,

I just wanted you to know that I am thinking of you. let me know how you get on.

I thought I had got off lightly with the chemo but the sickness has kicked in and my stomach is really up-set.

I hope Roz and Claire are doing well, keep in touch ladies and me know how you are both doing. It's a long road ahead but there is a light at the end of the tunnel.

Best wishes and positive thoughts to you all,

Sue

Hi JinxB,

Yep same as me, just had my third chemo. Did you have the ultrasound just after the third treatment?

I have no appointments booked in only chemo so I don't really know if it is working. I will have to put my trust in the hospital. I hope you cope ok with the treatment, it's not the best experience I know.

Take Care,

Sue

Hi Sue

Ah thank you, doing well so far. I managed to wear the cold cap today as scalp is better. Was so painful last night had to take naproxen. Aww sorry to hear your stomach isn't great, I suffered badly with constipation last time they have given me some sachets. I'll prob have the opposite too!

Hope you are all well ladies and wishing you a good week. 

Xx 

Hi Jinxb

Thanks for messaging us, I see you are the same as Sue. I'm having my second treatment now. I've managed the cold cap but will see how I do as I have fine hair too and have started loosing loads this weekend. My wig is ready on Thursday to collect just in case

Are you in East Kent?

X

I’m near Maidstone so not too far from you. This third cycle has been a struggle but I’m a week in now so starting to feel better. 

Hi Sue,

I had the ultrasound 2 days after my third round of the EC chemo. It was booked after my first follow up with the oncologist. 

I hope you hear something soon. 

Jinx

Morning Ladies,

Mich, how are you doing today? I hope the side effects are manageable.

I have an appointment with the oncologist on 22nd October, I am not sure what is is for. I would feel a bit better when the lump gets measurered so that I know if it is working.

Stay dry,

Hugs to you all

Sue

Hello Sue,

How are you doing? Anymore coastal walks? 

I had many appointments with my oncologist throughout EC and taxol. She mainly wanted to check my reflexes and check how I was doing in case she needed to adjust any meds. I would think no measuring is a good sign! I think they will give you a scan if you ask for one to put your mind at rest. Just think you are nearly through EC! That's the first milestone :)

I went to a conference in London by breast cancer care. It was for younger women so I met others and learned a lot! They also told me of an app called BECCAnfor everyone, which is primarily tips for moving forwards after breast cancer, but there are lots of inspirational stories on there and tips for fatigue / diet / even what bra to buy if you have a mastectomy like me!

My port comes out on 24 October which will be good as I'm noticing it now it's not being used.

Roz x

Thanks Roz, I was wondering why I was seeing the Oncologist. Im still not sure if I'm having a lumpectomy or mastectomy, it depends on the result of the braca test. I have been feeling really scared today, it's the fear of the unknown.

I'm glad you are moving on now, enjoy life to the full.

The 24th is a long time to wait to have the port removed. You've come a long way and are now out the other side, it must be a strange but wonderful feeling.

Keep well,

Sue xxx

Thanks Roz, I was wondering why I was seeing the Oncologist. Im still not sure if I'm having a lumpectomy or mastectomy, it depends on the result of the braca test. I have been feeling really scared today, it's the fear of the unknown.

I'm glad you are moving on now, enjoy life to the full.

The 24th is a long time to wait to have the port removed. You've come a long way and are now out the other side, it must be a strange but wonderful feeling.

Keep well,

Sue xxx

Hi Sue,

Yes it is a long wait, but I had to wait for my bloods to go back to normal and my breast surgeon is taking it out, and he's busy doing urgent operations so I'll let him off :) 

It's not easy and must feel strange not knowing which procedure you will have. I hope you won't have BRCA, but if you do, you will be in the best possible hands and there's so much support. We just have to follow a couple of extra steps and then go back to normal life again :)

Roz x

Hey ladies, 

I'm the same as you Sue, depending on my Brca result will depend on surgery, so I'm also waiting. At the moment I'm focusing on trying to be normal after dose 2. I'm actually venturing out the house today, going for lunch and mooch with friends in Canterbury. I do need to find a head band urgently now tho as Deff sporting a bald patch. 

Hope you are all well and have a lovely weekend despite the weather. Claire, hope you are having better weather than us. 

Xx

Hi Sue

How you doing, good week? I've been OK much better this time so hope it lasts. Just the constipation is a right pain in the.... Lol! 

Is your next treatment tomorrow? I'm having my port fitted tomorrow and booked for a scan on Tuesday. Any more appointments for you? 

Hope you having a relaxing weekend. 

Xx

Hi Mich,

I'm glad you have coped better this time, I always feel rough the first week after chemo and recover after that. Try Fruit & Fibre, it works for me.

My next Chemo is Friday as I wanted to get the sessions back to Fridays, when is your next one? I have an appointment with the Oncologist tomorrow, just routine I think but I have loads of questions. I still haven't had any scans or the lump measured. 

The weather is rubbish today so no walks. 

Look after yourself,

Love Sue

Hi Sue,

How did your oncologist appointment go?  My scan was fine, they didn't say much but the tumours are shrinking so happy about that, whew!

I have my next one on Tuesday.  I coped better round 2 so fingers crossed the same for round 3.  Same as you feeling yuck for about a week but no being sick and A & E visits lol!

I now have my port, the worst was waiting all day to have it fitted as was so hungry and thirsty!  They were fitting 3 that day and I was the last.

[@Rozza]‍  How you doing?  Did they take your port out today?

Big hugs

xx

Hi Mich,

My Oncology appointment was pretty uneventful! The Oncologist felt my lump and said it felt smaller but no scan. I am going back to see her in 5 weeks and will see the surgeon in December. The problem is, until they get the results of the brca test they can't tell me what surgery I am having so I am feeling unsettled. Have you had the brca test?

Anyway on a positive note, it will be my last EC tomorrow then on to Pax so half way there.

Roz, I hope you are well and back to living a normal life.

Take care ladies.

Loads of love & hugs to you both,

Sue xx

Hello Ladies!

Ah so glad to hear the EC is getting better for you both and Sue amazing you have one left! I'm hoping you will feel miles better on taxol, the best change being no nausea!

Mich I'm sat here now in clinic after having the port removed today. They took it out with local anaesthetic, as they say it's easier to get them out than in. It was totally fine :) I've taken tomorrow off work though just to chill out and keep my shoulder relaxed. I hope you both have a nice weekend ahead xx

Hi ladies,

Hope you had a good weekend :)

How was Friday Sue?  Hope it wasn't too bad.  I'm having no. 3 tomorrow, first time being plugged in lol!  Yeah I've been put forward for the test, so just waiting for the results and same as you the consultant will decide from there on my treatment after chemo.  Are you also having the pax / carbo combination?

My hair is quite thin on the top now i have to wear a hairband.  Not sure if i should carry on with the cold cap.  Will see how i feel tomorrow. 

Glad to hear your pot is finally out Rozza ;)  I had mine put in with local and sedation.  Was quite weird as i was awake but not bothered about what they were doing, I'm sure i probably did doze off as seemed so quick!

Hope you all doing ok ladies. 

xx 

Hi Ladies, I'm feeling a bit rough from Friday's chemo, very dizzy. Like being drunk without the fun! I nearly stopped using the cold cap on Friday as it was agony and I had a migraine throughout. I'm glad I persevered though as I still only need to wear a head band after 4 sessions.

Good luck today Mich, let us know how you get on. Each time is different for me so hopefully you won't suffer from bad side effects.

Lots of love to you both and keep recovering Roz. I'm so glad you've come out the other side. 

Sue xxx

Sorry for the radio silence ladies.  I've been having trouble accessing the site from my phone and I never seem to have the energy in the evenings to get the laptop out - combination of chemo and an 11 month old that doesn't sleep.  Will have a read through now and catch up.