HI, yes I have all the same feelings and mixed emotions. I am having my first chemo session today and am terrified. I was supposed to be going in at 8.30am but I got a call yesterday putting my appointment back to 11.30am as they haven't got approval yet even though I have already signed the consent form. I am praying that my chemo doesn't get delayed. 

It is really hard to stay positive but I am really trying. Good luck with everything, have you got a start date for your treatment? I found that the hardest bit, waiting for my appointment and praying nothing gets any worse whilst waiting. 

Hi SueBea

Urgh I'm not very clever I've just typed a message to you and did something wrong when sending and lost it, doh! I'll blame movement of the train! 

Thanks for your reply a d good to know we all have these mixed emotions. At the moment it feels like it's not me a d was someone else they were talking about. As I don't feel ill and haven't had any letters etc. I was diagnosed on Tuesday so early days still. Think they said chemo in about 4 weeks. 

Aww sorry your appointment has been moved, I hope they don't keep you waiting too long. Good luck for today, I'll be there soon needing some encouragement.

Mich x

Hey Sue

Yeah I'm in Ramsgate so just down the coast further from you. Do love loving here esp in the summer. Today err not so warm!

My hair started to fall out last night, not in clumps though just a lot more when brushing it. Today my scalp is so sensitive and tingling. 

I've finally got my appointment for the port fitting on 21 Oct, so just in time for the following one. Rozza is your port out now? 

The pre assessment went OK and bloods fine. I need to get there half an hour earlier to take new bus anti sickness meds, so fingers crossed. 

How u feeling now after Monday? Any new side effects? 

Xx

Hiya Mich,

I'm a lot better this time, not so nauseous. Just some advice, don't keep brushing your hair. When your head starts to tingles that's when you have most hair loss. I've been using dry shampoo and patting it out of my hair. It seems to be working as after 3 sessions I still only need a wide headband when I go out. 

Sending positive thoughts your way xx

Hi Mich,

No it's not out yet, but they did say they would do it from end of September so I'm expecting a date soon. My port is quite prominent looking as I'm slim, so I'll be glad when it's gone, although it has been really beneficial for the treatments. Are they going to do yours on local or general anaesthetic? I had mine on general but everywhere seems to differ. 

I'm so tired this week! I think the effects of the steroids and the high from finishing have gone and now I'm now wiped from 'normal life' and 2 days in work! 

Sue I'm so glad the hair loss is stabilising x

Hey Ladies,

Ah thanks for the advice Sue, I have dry shampoo so will give that a go.  Glad to hear you are feeling better this time around. Hopefully that will be me next week :)

Hope they dont keep you waiting too long Rozza.  I was told it will be under sedation, but will wait and see when i get the letter confirming.

Aww sorry to hear its been a tough week Rozza, hope you have a relaxing weekend planned.  It sure has turned nippy now!

Have a good one ladies

xx

I’m in the same boat as you, triple negative but just had my third treatment. Unfortunately I have lost my hair, it was thin to start with so I made the decision to not even try the cold cap. I don’t know if it helps but I’m Kent based and just had my progress ultrasound, not seeing the consultant for another week or so though so hopefully they’ll book you in soon. Have you found anything to help with the headaches if you are getting any? 

Hi Mich,

I just wanted you to know that I am thinking of you. let me know how you get on.

I thought I had got off lightly with the chemo but the sickness has kicked in and my stomach is really up-set.

I hope Roz and Claire are doing well, keep in touch ladies and me know how you are both doing. It's a long road ahead but there is a light at the end of the tunnel.

Best wishes and positive thoughts to you all,

Sue

Hi JinxB,

Yep same as me, just had my third chemo. Did you have the ultrasound just after the third treatment?

I have no appointments booked in only chemo so I don't really know if it is working. I will have to put my trust in the hospital. I hope you cope ok with the treatment, it's not the best experience I know.

Take Care,

Sue

Hi Sue

Ah thank you, doing well so far. I managed to wear the cold cap today as scalp is better. Was so painful last night had to take naproxen. Aww sorry to hear your stomach isn't great, I suffered badly with constipation last time they have given me some sachets. I'll prob have the opposite too!

Hope you are all well ladies and wishing you a good week. 

Xx 

Hi Jinxb

Thanks for messaging us, I see you are the same as Sue. I'm having my second treatment now. I've managed the cold cap but will see how I do as I have fine hair too and have started loosing loads this weekend. My wig is ready on Thursday to collect just in case

Are you in East Kent?

X

I’m near Maidstone so not too far from you. This third cycle has been a struggle but I’m a week in now so starting to feel better. 

I’m near Maidstone so not too far from you. This third cycle has been a struggle but I’m a week in now so starting to feel better.