Hi Mich,

Great news about your CT & bone scan and now you have a start date hopefully you will feel more positive. 

My next chemo is Monday, it seems like ages since the last one. No I haven't got a picc line in.

Try asking your cancer nurse about fertility, if she doesn't know, she will find out for you.

Take care,

Sue

Hi Mich

I’m really pleased to hear your bone scan and CT scan results! I had an MRI too and I also didn’t like the fertility specialist I was referred to, which was also at a different hospital to my oncologist. So much so that they offered me IVF to freeze eggs and I turned them down (but also because it delayed chemo and that freaked me out).

I had a port a cath put in as I was having EC bi weekly and taxol weekly so less time for the veins to recover. It’s not the nicest looking thing but I’m told PICC and port lines are good if you’re having more frequent doses.

I’m doing well thank you! I’m looking forward to life after my final chemo next week. Now I’m at this strange reflective stage where I’ve gained perspective and feel like being a nicer person so that’s a positive from it all at least! Next appointment with my oncologist is now not until early December, feels so strange! 

Wishing you & sue a lovely week ahead xx

ps I grew up on the coast. I think the sea breeze will do wonders for you :)

Hi ladies, 

So your last session Rozza, hope it went well  

I think I'll have the same treatment Sue, the combo one then paxol twice weekly. I'll find out more in my pre assessment I guess. 

I've also opted for the zoladex injections, nothing to loose by giving it a go. 

Clinical trials don't seem to be an option for neoadjuvant treatment in my area. Just waiting on info from london. I know must be mad to volunteer myself to be a Guinea pig

How you ladies doing? I'm looking forward to a relaxing weekend and not too much reading online. I did look a bit now I got my pathology report so want to make sure I understand it lol! 

Hope I'll manage with the cap of not, one of those things eh. 

I got myself some colour pens so I can faff with my adult colouring book. Mindless activity should help. 

Have a lovely weekend ladies

Xx

Hi Mich & Rozza,

Rozza, you must be delighted to be having your final chemo next week. Mich, chemo is manageable but obviously not the best experience! The cap is definately worth a go, I've still got hair and I have my 2nd chemo Monday. 

I also live by the sea and swear by the sea air so I will be having a walk this weekend, weather permitting.

Have a great weekend ladies

Sue xx

Hey Sue

Ah thanks for your message. Yeah psyching myself up! Bit teary tho the past couple of days I seem to well up at anything! I guess all part of what I am dealing with. I think getting my diagnosis report made it all feel more real. 

Yup I'm going to head for a walk. We've all joined this global challenge at work and have to walk at least 10 000 steps a day hmmm. So better get started  

Hope you are well Rozza

Enjoy your weekend ladies xx

Hi Mich & Sue,

Enjoy your coastal walks! I’m in London so I’ll stick to the parks :) There are some clinical trials for advanced metastatic using immunotherapy drugs but none apart from that advertised around here. If you’re a BRCA carrier there’s a few trials for that though. 

Deffo try the cold cap and see how you go, I still have 50% of my hair and have loads of new hair growing back already where it fell out in the first month. 

Aww it’s natural to feel teary and scared but as Sue says it is definitely manageable and much better than it was 10-15 years ago. Once you have the first dose you can calm down, I guess it’s fear of the unknown for now.

I was hoping to celebrate Wednesday with a glass of wine but my tastebuds have changed and wine tastes horrible! So a nice cupcake will do :)

If either of you have any questions about the operation or EC/taxol experiences at any point just let me know. 

take care xx

Hi Mich and Rozza,

I hope you are both having a lovely weekend. Rozza, I hope you don't mind me asking about your experience with the cold cap? I had my first cold cap 3 weeks ago and am having my second session tomorrow. I've already lost a lot of hair but it's not noticeable. Did you continue to lose hair with your second session or did the shedding slow down? I know it sounds trivial but it's a big deal to me. I was just wondering when your biggest hair loss was. Of court it's different for everyone but I'm hoping the shedding will stop or at least slow down. 

Take care ladies,

Sue xx

Thanks Rozza, it's D-DAY today and I'm a little worried to say the least. It's such a crawl side effect after everything we have to endure. I'm prepared for a long, boring day.

Mich, I hope you are feeling a bit more positive today. The sooner the treatment starts, the sooner it finishes.

Have a lovely day ladies,

Sue xx

Good luck Sue! Hope they don't keep you there all day. 

Hope you had a good weekend ladies, 

Catch up later

Xx