HI, yes I have all the same feelings and mixed emotions. I am having my first chemo session today and am terrified. I was supposed to be going in at 8.30am but I got a call yesterday putting my appointment back to 11.30am as they haven't got approval yet even though I have already signed the consent form. I am praying that my chemo doesn't get delayed. 

It is really hard to stay positive but I am really trying. Good luck with everything, have you got a start date for your treatment? I found that the hardest bit, waiting for my appointment and praying nothing gets any worse whilst waiting. 

Hi SueBea

Urgh I'm not very clever I've just typed a message to you and did something wrong when sending and lost it, doh! I'll blame movement of the train! 

Thanks for your reply a d good to know we all have these mixed emotions. At the moment it feels like it's not me a d was someone else they were talking about. As I don't feel ill and haven't had any letters etc. I was diagnosed on Tuesday so early days still. Think they said chemo in about 4 weeks. 

Aww sorry your appointment has been moved, I hope they don't keep you waiting too long. Good luck for today, I'll be there soon needing some encouragement.

Mich x

Hey Rozza 

Ah thank you for your advice, yeah sure is a mixed bag of emotions. I said to my husband I feel like a bearer of bad news, as had to tell my great aunt so could find out about family history and she was very sad as she had just lost her friend of 30 years. I know it's better to tell people so they can support you, just feels odd as like you I don't  feel ill just tired.

I'm working still as want to keep going until I know my treatment dates and they have been very good and flexible which helps. 

Ah thanks, I'll ask about that as I was seeing the fertility clinic, so maybe one of the recommendations. 

Glad to hear your chemo is almost over bet you can't wait! Did you also have the bone and ct scans?

Feels strange I'm going to have this long Road ahead of me, but them you hear about so many people like on here that are going through the same then you realise you are not alone

Hope you are well today and enjoying the lovely weather  

Xx

Hi Mich,

I'm having 4 sessions of EC 3 weeks apart and then 4 Paclitaxel sessions 2 weeks apart. I feel a lot better mentally now that the chemo has started. The first week after the tratment I was feeling very sick and had headaches but the second week, I feel loads better. 

My chemo started 5 weeks after being diagnosed and the wait seemed never ending!

Let me know how you get on today, hopefully you won't be kept waiting too long.

Drink loads of water, I was advised to, and it really helps.

We've been dealt a crap hand but we will beat it.

Take care,

Sue xx

Hi Sue, 

Ah glad you are feeling better now the treatment has started. It's all the unknown eh and waiting for those appointments to come through. I've got a call with the nurse tomorrow to ask some questions as I have no more appointments or scans lined up.

Today went OK, the room was freezing cold! So hard to keep still when you shivering. I only realised once it started how cold it was, doh! And now I'm sweating buckets outside, no happy medium eh. 

Thanks, in drinking as much water as I can. Also been put off coffee not that I drank much but drinking my peppermint teas now

Hope you having a relaxing eve and no doubt I'll be asking more questions before you know it

Mich x

Hi Mich8,

I didn’t have the bone scans or CT scans, probably as mine was classed as stage 1 even though I had one in each breast so they just operated and then chemo. I did get the nuclear medicine injection the day before the op so my lymph nodes would ‘light up’ for the surgeon! I worked right up until the last minute also.

I find that most of my new friends at the chemo unit are over 60 and have been quite a hoot! The nurses were funny and sweet also so I felt really at ease. It kind of humbles you as you realise how many lovely people there are in the world trying to help you. 

Lots of people recommended the younger women together group to me as support, and also Trekstock, which is a charity for younger people and they have some interesting interviews / discussion topics on their website. 

Today has been baking in the park! I’m located on the sofa now for the rest of the night! Have a good evening xx

Hi Mich,

Feel free to ask away. I found the fear of the unknown is the worse part.

Take care,

Sue

Hi Mich,

How's it going? Have you got any dates for Chemo? I hope you are feeling OK and don't have to wait too long.

Have a great weekend.

Take care,

Sue

Hey Sue

I'm doing OK thanks, just struggling a bit with my migraines. Good news tho my CT and bone scans are all clear! V relieved about that. 

I have a start date of 17 sep and pre assessment on the 12th sep. Still waiting on a mri which is now the 11 sep. So not moving too badly I guess, prob the same as you. 

When is your next session? I hope to see my oncology doctor this week. I had to see another one at a different hospital on Friday. Wasn't too impressed with him, he didn't answer my questions on fertility and clinical trials. Ive heard my oncologist is lovely so hope to meet her soon.

I'm also feeling a bit like you were, where I just want it to start now. Especially as I've had most my scans so just around the corner. 

Have you got the picc line in? 

Hope you are well otherwise and had a good weekend. 

Mich x

Hey Rozza, 

How's it going on your side? 

Ah that's lovely you have a joke and laugh with fellow patients. I live by the sea side with lot of retired folk so think I'll be making some friends too

Hope u keeping well. 

X

Hi Mich,

Great news about your CT & bone scan and now you have a start date hopefully you will feel more positive. 

My next chemo is Monday, it seems like ages since the last one. No I haven't got a picc line in.

Try asking your cancer nurse about fertility, if she doesn't know, she will find out for you.

Take care,

Sue

Hi Mich

I’m really pleased to hear your bone scan and CT scan results! I had an MRI too and I also didn’t like the fertility specialist I was referred to, which was also at a different hospital to my oncologist. So much so that they offered me IVF to freeze eggs and I turned them down (but also because it delayed chemo and that freaked me out).

I had a port a cath put in as I was having EC bi weekly and taxol weekly so less time for the veins to recover. It’s not the nicest looking thing but I’m told PICC and port lines are good if you’re having more frequent doses.

I’m doing well thank you! I’m looking forward to life after my final chemo next week. Now I’m at this strange reflective stage where I’ve gained perspective and feel like being a nicer person so that’s a positive from it all at least! Next appointment with my oncologist is now not until early December, feels so strange! 

Wishing you & sue a lovely week ahead xx

ps I grew up on the coast. I think the sea breeze will do wonders for you :)

Hi Mich

I’m really pleased to hear your bone scan and CT scan results! I had an MRI too and I also didn’t like the fertility specialist I was referred to, which was also at a different hospital to my oncologist. So much so that they offered me IVF to freeze eggs and I turned them down (but also because it delayed chemo and that freaked me out).

I had a port a cath put in as I was having EC bi weekly and taxol weekly so less time for the veins to recover. It’s not the nicest looking thing but I’m told PICC and port lines are good if you’re having more frequent doses.

I’m doing well thank you! I’m looking forward to life after my final chemo next week. Now I’m at this strange reflective stage where I’ve gained perspective and feel like being a nicer person so that’s a positive from it all at least! Next appointment with my oncologist is now not until early December, feels so strange! 

Wishing you & sue a lovely week ahead xx

ps I grew up on the coast. I think the sea breeze will do wonders for you :)