Small cell bladder cancer

I am currently having treatment for small cell bladder cancer which has spread to the lymph glands and pelvic bones. The chemo is treating me kindly with few side effects and I am half way through 6 cycles. This is a life limiting illness with indeterminate longevity, depending where the little devil invades next.

As this is an incredibly rare and almost unknown cancer form, I can only find a few scientific reports online and would welcome some more human experiences good or bad, to make me feel I am not the only one out there!

On a more positive note, at  a meeting of older people yesterday (I am 68) on our table of 8, 6 had come through at least one cancer and many were years after diagnosis, so a really positive message out there.

  • Hi hermaj,

    Welcome to Cancer Chat, although I'm sorry to read about what you're going through at the moment. I'm very glad to hear you're finding the positives and that the treatment is going well. It's so important to try to maintain a positive mindset, but I know how incredibly difficult this can be.

    It's also great to hear you're meeting with others in similar situations - I'm sure that is a helpful and positive thing to be doing.

    While I can't offer any advice on what you're after, my reply here will boost your post again so hopefully more people will see it and hopefully any others who have gone through or are going through something similar will be along soon.

    I hope you find this forum useful and I want to wish you all the best.

    Ben

    Cancer Chat Moderator

  • Thanks - so difficult to find anything on this so rare cancer but will keep looking, and getting involved in your forum