Complications after DIEP Flap - anyone had the same?

Hello all

I had a DIEP flap reconstruction in November after my implant of 23 years had an intracapsular rupture. The implant was from DCIS with a small amount of invasive cancer in 1995 and a full mastectomy on my left side. Fairly long surgery in November and brutal recovery in the first week but rest of the last 3 months has been ok. Have stuck religiously to physio for the 3 months and added walking from day one and swimming from 6 weeks. Surgeon said all ok to go back to everything on 15 Feb (I go to the gym 3 times a week pre surgery) but very slowly. After a session in the gym last Sunday I felt a bit sore and had aches across my stomach and chest, pain was not usual gym soreness and went to the docs/A&E last Wednesday where they found 4 clots on my lungs. Now on heavy duty blood thinners and starting to go through what the causes might be - surgery (unlikely at 3 months?), some sort of blood disorder (my dad died of a DVT/PE after knee surgery 25 years ago), from some other hidden cause of cancer or something else or just random? I don’t look forward to a life on blood thinners, changing my lifestyle and am in a bad phase of thinking ‘ how unfair/why me’. I’m also freaking out at some of the info on the internet and yes I know I should not read it. Does anyone have a similar story with a positive outcome or advice on what to do next?

thanks 

 

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    Hi Duckdown,

    I am so sorry to hear of your latest set of problems. I have had 2 bouts of breast cancer 8 and 9 years ago respectively. I had a lumpectomy first time around and a double mastectomy the second. I didn’t have any reconstruction, due to scarring from previous surgeries, which made it impossible for me to use my own donor skin.

    There are some people on this site who have developed DVTs for various reasons. Some have had better outcomes than others. If you want to read these posts, go to the blue banner at the top of this page and click on the search engine. Insert DVT, plus whatever key words you want and click. This will bring up previous posts on this topic.

    You are in a bad place at the moment and I don’t blame you. Don’t feel that you are alone in this. The state of ‘why me’ anger and, ‘it’s so unfair’, is a very common one. As you get further along the line, it will usually become more positive. I am not a doctor, but from what I have seen on here, whether or not you have to stay on strong anti-coagulants for the rest of your days is quite subjective and, will depend on a number of conditions to do with your general health. I sincerely hope that this will not be the case for you.

    Do please stay in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx