Newly diagnosed - Grade 2 provisional lobular carcinoma

Hi All

Was diagnosed 3 weeks ago with Grade 2 provisional lobular carcinoma. Despite me having numerous mammograms and checks at Breast clinic (due to fibroadanoma) it was not seen. Oncologist thinks I have had it for years. It is about 10 cm but strangely grew like a fibroadanoma. In 3 weeks I have had a biopsy, CT scan, bone scan and today an mri on liver and breasts. 

The good today is that I managed to get through the mri scans. They weren't going to let me as I had taken diazepam.

The bad is firstly nervous about results of liver. CT scan showed small benign adhesions.

Second bit of bad news is that my ex partner who moved in with another woman 6 months ago and has had access to our children, changed his mind about putting family court on hold due to my diagnosis. Without warning he sent me court papers to attend during my chemo treatment. I have spoken to his solicitor, requested letters from GP etc to explain that  I will not be fit to go but could do without the stress. A cruel act in my opinion. He hasn't even talked to the kids of asked them how they are feeling about my cancer. 

Last bit of good is that chemo starts on Tuesday. Any advice regarding the cold cap?

  • Oh bless ya .. what a horrible uncaring ex ... the good news there is he's someone else's problem .. lots beond belief how crule they can be at such a time ..

    The thing is, if he does have them for the odd week end, you may find it helps you out... so many feel wacked on chemo.. and you'll need to sleep an have little energy .. and it will help the kids to get out too .. as it's really hard on them ..

    I hope you kick cancers butt and find someone who is kind .. and although you've a way to go, hold on to that thought ... I was married to a man who only thought of his self for 28 years .. I always thought he'd change .. but they don't.. it was the best thing I ever did was divorcing him .. coz I don't think it would have made it any easier if they had stayed in our lives .. 

    So hope you get the info you need about cold cap .. if you look on the good and bad thread .. there's lots of lasses on there and I'm sure you'll get the answers you need .. they make everyone welcome ...

    Big supporting hug from a fellow breast cancer lass .. Chrissie x

  • Hello, you ex sounds a peach! Thank goodness he is no longer your concern, he sounds cruel and bitter, you certainly won't be up to attending court...blimey the stress!! 

    So chemo Tuesday eh? I am gearing up to my second cycle next Thursday, I chose not to cold cap simply as I suffer with migraine and headaches and believe the cap could make these worse, however I do know of lots of ladies where it's working well for them, there is a thread on here somewhere all about cold capping, worth having a look.....

    so it's chemo first then surgery ? Then rads? Oh boy, what a surreal trip we're on! But do you know what? We can and will get through this...xxxxx

  • Hi Marlyn

    Thanks for your reply. How did you find the side effects of your first round of chemo?

  • Hi, I had to go to hospital day after chemo due to constant vomiting, but have been reassured the ant sickness meds will be upped for next week..

    my over riding side effect has been fatigue, I can't really do much but am lucky that my work can be as demanding or undemanding as I want it to be....Thank goodness!!

    how are feeling? Xxx

  • Thinking of you Marlyn... lots here vertually holding your hand ... your amazing,  you kick cancers butt lass ... Dbird you too ... you kick cancers *** too ...

  • Dbird....after my vomiting was under control I was fine...in fact my appetite ramped up and have gained 3 lbs..lol  still completely whacked out though, could fall asleep on a clothes line....hey, this time next week!!!! ( big grin) xxxxx

    chriss...thank you....these forums have been a god send, how people go through all this stuff without chatting to people who know and understand I'll never know...I need every single one of you xxx

  • Thank you dbird, you give me light at the end of the tunnel, your nearing the end of the chemo....I know I will too....it's experiences like your that keep me chugging away, you have really helped me...thank you xxxxx