Hi Lemons,

am sorry to hear the reason why you are here but there a few of us who have been through this journey who are more than happy to help and support and of course answer any questions.

I am assuming tests were already done that resulted in tonsil removed and am surprised CT/MRI scan not already done at same time and you make no mention of biopsy so am unclear on what tests have actually been done and has there actually been a dignosis of tonsil cancer and CT scan a further check?

I was diagnosed with throat cancer last July and am week 11 post treatment so feel free to ask any questions you may have.
On the plus side if there is a diagnosis of throat cancer although the treatment itself is a challenge and one of the most difficult, it is one with the highest rate of success and cure.

I have written a detailed blog which is on here and I would post the link to you but, probably best to get some confirmation first as no point in looking at treatment that may not happen.

Let me know if I can help in anyway I can ( let me know if you want to read my detailed blog and I will post link) and ask away anything you feel we can help with on here.

Also happy if you want to friend request and chat on one to one basis.

kind regards

ian

Thank you Ian appreciate the reply. She was examined after a referral from the dentist. The Dr booked her in for the tonsil to be removed as there was a growth on the tonsil and clearly visible if you looked into her mouth, like a flap of skin. There was no obvious lump to be felt anywhere. They didn't seem overly concerned but thought best to remove and send off for biopsi. She had the MRI last week. Dr said he could see a growth on the MRI results. So CT tomorrow and biopsi to follow. They said we would meet to discuss results next Thursday. I didn't get a chance to speak to the surgeon unfortunately as he spoke with my wife when I wasn't there, he just told her he didn't like the look of it and they believe it's a tumour. Sorry to hear about your cancer. Hope it's all going ok for you. 

Hi Lemons,

I'm fine thanks and in recovery period at the moment and trreatment finished,
So i'm sorry to here they think its a tumor and I was told the same and guess they pretty much know when they see.

Take a pen and paper with you and jot down what told as you may forget. It's a lot to take in but re iterate the high success rate of treatment. Please keep in touch once you have more news and let me know the outcome of next Thursday.'s meeting. I can then share my blog with you to help further along with being here anyway I can to help
ian

Hi Lemons

My husband got his tonsil cancer diagnosis just after christmas and is almost half way through the course of treatment - he hasn't had surgery, is having chemoradiation.  It's very bewildering when you are waiting to get the full picture, but the more we hear about it the more reassured we are about the success of the treatment.  Ian's advice is good, hopefully you can get to the appointment also as two sets of ears are better at remembering.  We took two sheets of A4 paper full of questions, however most were answered before we actually needed to ask them, we were given loads of time with the consultants and then even more with the specialist nurse after.  Hope everything goes well for you both

Hi Lemons and welcome . Sorry you find yourself here at all but you will find lots of support from our small group of both those with head and neck cancers and there partners/ loved ones. My husband had stage 3 tonsil squamous cell cancer diagnosed in Dec 2015 and after chemoradiation ( 5 cycles of Cistplatin and 30 fractions of radiotherapy) plus some surgery has been in remission and cancer free since July 2016. This is the worst time - the not knowing limbo time - but after Thursday you will hopefully have some answers and a plan. As Ian says take a pen and paper with you and jot down any questions you have beforehand as you wont remember them when you get in tbere.

Dont panic if theres more than one person in the room as often theres a specialist nurse there too.

Please come back and let us know how you get on.If it is the outcome we all fear then dont go to Dr Google as the stats are out of date and only give worse case scenarios. Theres lots of us here who are success stories - you can beat it so please don’t automatically think the worst. Im sure others such as [@RadioactiveRaz]‍ will be along to offer support as well.

Best of luck and if you have any questions in the meantime please ask away and we’ll try to answer or if you prefer then feel free to send a friend request .

best wishes 

Emma aka Newlymarried 

HiimLemons this is Hazsl fingers x that all ok but if nit a few of us on here are around to listen and offer our support. I am 25=weeks post radiotherapy for tonsil cancer so itbthe words of read the book bought the  t shirt etc  been there done it. 

If u need info when yiuve got diagnosis I have a blog 

www.radioactiveraz.wordpress.com. It’s a truthful look at what happens please keep off sr google the stats like Emma said are way out of date  and yiu will scare yourself silly   I had 9 people in my MDT multidisciplinary team meet don’t freak out putblike Ian says take a pen and paper  we took our daughter to take   notes 

best wishes keep us informed 

Hazel ala radioactiveraz 

Hello Lemons!

This is a shock to the system, I know. And it is made even more surreal by the fact that it is in the tonsil which seems somehow a bit daft and insulting (well, it did to me) but it is a serious road you have set out on. There are so many fabulous people on this site who can help you with every step of the way and no question will be too small or unusual or embarrassing.

Write everything down. Don't believe everything you read. If something seems wrong for you - if you find medication awkward or difficult, for example - ask for help or an alternative. We are not all the same and not all treatment suits everyone equally. Your recovery is as individual as your illness.

Try to keep a sense of humour. This is no joke and nothing to laugh at, but it isn't forever. Things will get better. You will meet some very special people and encounter acts of kindness and dignity that will leave you speechless. Take every opportunity to smile. 

I am now 3 weeks post treatment. I was diagnosed after my tonsil wouldn't go down after tonsilitis. It is a slog but I have an amazingly supportive partner and imagine that your wife is probably in the position now that I found myself in. She sounds lucky to have a supportive partner too.

Anyway, enough of this. Be strong and hug each other.  

Sooners,

Allie