Hello-New to the Forum

Hello-new to the forum and hoping to connect with others to share experience and chat, I’ve just finished treatment-chemo and radio-and currently waiting impatiently for my first check up with my oncologist. Waiting is tough, but you all know that already! 

  • Hi Marlyn

    I was saying it was cancer, the gift that keeps on giving! How did you get on with your chemotherapy? Hope it went ok and you’re not suffering any bad effects. xx

  • Hi minska, oh boy oh boy, I underestimated chemo....it literally knocked me off my feet! Chemo Thursday....spent all day fri on a drip in hospital with uncontrollable vomiting...it was completely vile!!! 

    Feel more human today, just feels like a hangover...yuk!

    sounds like your doing ok? I'm glad your off the jabs now.....onwards and upwards Hun xxxxx

  • Oh Marlyn-you poor thing! That sounds awful. I think I got off lightly and didn’t have anything nearly so bad when I had mine. How many sessions are you having? I was supposed to have 5 but only managed 4 due to my blood results being low the day of my last one. Apart from that I was ok with it. 

    I hope it’s not so bad next time for you-maybe they’ll make some changes to it to see if you tolerate it better? It’s not fair feeling like you’ve got a hangover without any of the enjoyment of a drink! 

    I’m feeling good now thanks-hopefully all will go well at my 6 week check up tomorrow. Fingers crossed. xx

  • Got 5 more to go, frankly I would be thrilled if they missed one out....I was seriously rethinking the whole thing over the weekend....will chat to oncologist...

     

    good luck at the check up tomorrow, let us know how it goes? Xxxx

  • Yes-will report back after my appointment.

    Hopefully your oncologist can make some changes to help with the chemo..mine did talk about reducing my dose, but in the end my bloods were just too low to have it at all. I was feeling absolutely fine, so was very disappointed! xx

  •  

    Hi Minska,

    I'm glad to hear that you will be able to discontinue your tablets by the end of May and, that you are no longer a human pin cushion.

    It is also great news that you are free to travel again and, can now go on holiday.

    I shall be thinking of you tomorrow and, hope that you get good news.

    Kind regards,

    Jolamine xx 

  •  

    Hi Marlyn,

    I am so sorry to hear about your experience with your latest round of chemo. Has your care team managed to find something to help the vomiting?

    I'm glad to hear that you are feeling a little better today, even if it still feels as if you have a hangover. It sounds like a good idea to discuss this with your oncologist.

    Kind regards,

    Jolamine xx

     

     

  • Hi Jolamine

    It was a bit of a mixed bag today really. I saw my consultant’s registrar who did the examination. This wasn’t uncomfortable at all and she was able to check and see my cervix which she said looked normal and not red. However there was a “tiny” area at the side which might be scar tissue or might be the last of the cancer. I will get an mri mid March and a follow up appointment at the start of April. Then they will decide on next steps if need be.

    I have found it really hard since my diagnosis in September last year never hearing anything positive and no words of encouragement. My gynaecologist said at the start  “I am treating you to cure you”, but since then no-one has had anything positive to say! No indication of whether treatment is going the right way, nothing. Mentally I am finding that very tough. Felt a bit down today when she spoke of what might happen if it’s still there at the mri scan...usually I’m really positive and upbeat but today I don’t feel that way at all and niggling doubts and negativity have crept in much to my annoyance! xx

  • I can totally understand what your saying, after going through so much and for so long some encouragement wouldn't go amiss. 

    I would feel exactly the same....it all just seems an uphill struggle doesn't it? 

    I feel if they were really worried you would be in far sooner, this is what I would hold on to anyway.....

     

    come on lass...we must and can do this, I know it's not easy but we will win in the end xxxx

     

  •  

    Hi Minska,

    I am so sorry to hear about how your appointment went today. and to learn that you are going to have to be patient  for another 6 weeks or more before you get a definite answer. It is great news that your cervix

     looks clear. Hopefully the tiny area at the side is just scar tissue, but I can understand why you feel so dejected today..

    Unfortunately, in my 9 years of experience with cancer, I have not had any words of encouragement either. I suspect that, because of the type of disease that cancer is, doctors don't want to be sued for giving us a false sense of security, so say nothing instead.

    We often refer to our cancer journeys as a roller coaster ride, because of all the ups and downs along the way. Because of these we find that, no matter how positive we usually are, most of us still have the occasional day that is tinged with niggling doubts and negativity.

    Still, tomorrow is another day, don't let these nasty doubts rob you of your positivity.This is the one trait above all others that will help you to fight this horrible disease, if it is still there. If it's not, it will help you to get on with your life and live it to the full.


    Thinking of you and wishing you the strength to crawl out of this black hole - there are brighter days ahead.

    Kind regards,

    Jolamine xx