The beginning of the end

Hi everyone, I found this site over the weekend whilst looking for help and guidance on the subject of metastatic melanoma which my father has. I read a little of some of your heartbreaking stories and and am so impressed by the love and support you have all found here. My father is 89 and was frail when diagnosed in November with one year maximum left, he has been fairly stable without treatment since then but has gone downhill both mentally and physically over the weekend. I am currently in Spain but travelling back to the UK on Saturday to see what has to be done next, my stepmother is superb with him but she is also elderly and has health problems. My main concern is how much help will be available with nursing etc as he wants to remain at home and I'm not sure that I am cut out for that. Does anyone have any experience with the end of life plan at home, especially in the Kent area. Thank you all.

  • Hello,

    Sorry to hear about your dad. I have no experience in end of life care but I do know the Macmillan nurses are worth contacting and Marie curie . But I would imagine your first port of call would be your dads GP. Does he want to stay at home? I do know hospice care is wonderful ( my father in law was in one) but they often have waiting lists...it would certainly give you and your step mum some respite...

    I do wish you well at such a difficult time....xx

  • Hi sorry to hear about your dad . My mother in law has Lung Cancer also has a lot of other ilnesses along side the cancer.She to would like to stay at home as she is being Symptom treat where the nuse comes out every couple of weeks to see how she is doing.Your G P . should get a Nurse to come out and assess the needs of your dad and prepare a care plan on the needs and wishes of your dad.As your dad deterioates nurses and care should be given.

    I have cared for my Mam as she had Lung Cancer only it was 20 year ago and she was diagnosed and died 3 month later but had her wish and was at home .When i look back there wasn`t much care offered but i do know that Our Loved Ones do have more Options now.

    If i was you i would get your step mam to ask a Nurse to come and visit when you are present so you can ask advise and set a Care Plan and Services to be in place to give your dad the Care and Dignity he deserves.

    Safe journey over to see your dad ...Kind Regards.

  • Thanks for your good wishes both. The situation has rather resolved itself in the last couple of days as my Dad had a fall and was taken into hospital. A scan has revealed that the cancer has spread to his brain, he is on antibiotics and fluids. I don't know how he has fared since as my stepmother,  clearly occupied with caring for him, has not managed to drop me even a short text to say how he is. Apparently the end of life package is being fast tracked and a hospital bed is to be brought and set up in the sitting room so he can look out on the garden but whether he will come back to it I don't know. Thank you again for replying to me, I hope you can see this post as I've never joined anything like this forum before. thesaint , I hope your MIL has a comfortable and pain free journey to the end.

    Kind regards.

  • Thank you..i hope your dad is comfortable and maybe you could ring the hospital and they will let your dad know that you are staying in touch.Hope you are coping with all of this ...it is so hard you not being in this country.

    Thinking of you ..hope your dad is comfortable and pain free ..love to you all x