Hi all,
This is a very humbling forum and sad to find so many suffering in one way or another.
I am a 55 year old male, married for 30 years with two daughters. I had surgery in March to remove my Inferior Vena Cava (IVC) having been diagnosed with Leiomiosarcoma. The surgery appeared succesful despite numerous complications and three months in ITU. The experience was frightening and very touch and go. despite various nasty side effects, it was all worthwhile as I was able to walk my daughter down the aisle in August.
I am now ten months on from the surgery and unfortunately, my most recent CT scan and a further MRI has confirmed a recurrence of the sarcoma in a blood vessel at the back of my liver. The tumour is fast growing and inoperable and unlikely that either Radio or Chemo will have the desired effect in this instance.
SIRT has been suggested by a close relative and I am going to see what my Oncologist thinks. In the meantime, I would love to hear of anybody's experience with treatments for Leiomiosarcomas especially with SIRT in mind.
