Just Diagnosed Stage 3, Confused!

I have just been diagnosed with stage 3 bladder cancer. The CT scan shows that it has not gone beyond my bladder.This leaves me somewhat confused as, apart from my bladder being somewhat weaker following the initial scrape and wash, I feel perfectly well ... My urine seems normal, I am strong with a positive outlook, have no pain, eat healthy and have a good appetite. After the initial treatment, all my fluid discharge was perfectly clear, unlike all the others on the ward where it contained blood. So, I find it hard to accept that I am being told that I may need to have my bladder removed and wonder if the diagnosis is incorrect. I am reluctant to have someone cut bits out of me when I do not feel at all ill. My first consultation on proposed treatment is in 3 weeks time and I will of course listen to and discuss all the options. Meanwhile, I have looked at all the various 'Alternative Treatments' such as the Budwig Diet and wonder if anyone out there has knowledge of any positive results from 'non -surgical alternatives'? Any Comments any Advice would be welcome please.

  • Don't kid yourself - get a second opinion by all means if you doubt the truth of what you are being told but "alternative" therapies more often than not lead to avoidable death.

    That's why it is illegal to sell cancer cures in both the UK and the USA. 

    Apologies for being so blunt but there have been so many cases where people have died unecessarily after opting for so-called alternative treatments.

     

    Best wishes

    Dave

  • I agree 100% with Dave, don’t go with alternative therapies. you are playing with your life.

  • Thanks so much for all your helpful comments. They have given me a much clearer indication of what lies ahead. I would however be interested to know if any of you adopted special diets or whatever to enhance your treatments, please.
  • Hi Harry,

    One thing to consider is that it's better to have surgery while you are well rather than when you're ill, as you're much more likely to have a better outcome. The fewer comorbidities, the better your chances.

    As to diet, my opinion is that you should eat what you want. What you enjoy. For there may come a time when you're unable to eat things due to a change in taste or lack of appetite, nausea or whatever. No diet is going to significantly alter your disease progression or overall survival.

     

    Best o' luck

    Taff

  • Hi Harry,

    I followed my oncologist's advice and monitored my weight on a daily basis as the chemo side effects suppressed my appetitie and played havoc with my digestive system. He told me that the chemo I was on often led to weight loss which had to be kept in check. My aim was to keep my BMI within the normal range if at all possible. I went into chemo slightly overweight and ended with a BMI of about 25 (sadly I'm now overweight again).

    When my side effects were at their height, I survived on home made power shakes (peanut butter, full cream milk, chocolate etc. all blitzed together), homemade fruit and vegetable smoothies, homemade soup (blitzed in a blender), cake, chocolate and soft fruit. All taken little and often as too much at once triggered vomiting. There are some great recipes online and my wife bought a chemo cookery book for ideas. We reversed the logic of a weight loss diet and added cream, butter and cheese where possible.

    My taste buds and sense of smell were affected whilst on chemo, just the smell of some things I'd previously loved made me retch - so we experimented with what food and drink I could tolerate. 

    I hope this helps.

     

    Good luck

    Dave

  • Totally agree with you, I am on the verge of falling out with my sister as she says I shouldn't have chemo and radiotherapy ( she calls them poison) for my breast cancer....( I get my treatment plan next wed) honestly....she has read a couple of books and knows better than my cancer doctor??? As if I'm not stressed enough.....so....I am glad I found this thread....xxx

  • Thanks Dave ... and everyone else who has responded with very sound advice,

    I suppose I have all this to come and will deal with it. As I have said elsewhere, my cancer is not unexpected as I am the last in my family to succumb to what is a genetic rogue gene ... but none of us let it get us down! At lease, in my case, it is not one of the worst types which one might get.

    I still hope to live til I'm 120 years of age ... or, at least, to be darn nuisance!

    HarryP

     

  • My worst “advice” was from a colleague who had read an article in a magazine (Hello I think) and suggested that instead of chemo I should add baking soda to my diet as this would make my blood less acidic and kill my cancer! 

    Fortunately, I ignored her advice and lived to tell the tale! 

    We can’t choose our family and every village has an idiot! :-) 

     

     

  • Nowt wrong with baking soda .... add it to the water when boiling an egg and it makes it easy to peel the shell off ... dunno if it works on tumours tho (?) lol