New to the site. Neck / Throat Cancer

There I was enjoying life when I get told I have a very aggressive form of cancer in my neck, everything collapsed. After the initial shock I made up my mind to fight it and I will beat it.

Had major surgery on 3rd October at the specialist cancer hospital in Valencia, I must say an incredible place. Apparently the surgery went well. 12th November PEG feeding tube fitted. First Chemo on 29th November, the first three days after the Chemo was not pleasant. but apart from that, the Chemo after affects have not been too bad. I have thirty RT sessions scheduled, they started also on 29th November. I have had twelve so far, first 7 or 8 were fine, since then it has been fairly unpleasant. Very sore throat, taste buds have stopped working, saliva production is close to zero. Food varies in taste from "metallic" to "lighter fuel" or nothing at all. I love my food and I am missing that pleasure immensely. At the moment I can still swallow but the medical team have warned me that will probably stop as well. More RT this week and my second Chemo on Thursday, not looking forward to that. Apart from all that I feel fine, maintaining my weight and apart from maybe feeling tired doing pretty well. The RT specialist is concerned about mucositis and has recommended a full spectrum amino acid drink, Aminomix Bi1 to help combat this condition. 

I would like to hear from anyone with a similar condition and anyone who has been advised to take Amino acids.

  • The end is in touching distance for me now the time really does fly, today was session 26 of 30, Doc is pleased with me and how Iv coped with it, weight now stable but swallowing has got harder in the last few days. My last session should be next monday but he wants to change that so I have 2 sessions on friday so that theres no gap of 2 days over the weekend, i`ll know more tomorrow.

    It will be great not having to go next week :), then a check up in 6 weeks and scan in 12 weeks to check all has worked.

     

    Dave 

  • Hi Dave

    onward and forward good idea if they do 2 I also had a bank holiday in my last week and they did 6 on me a few staff came in on the Saturday. .

    the next process is the long slow road to recovery I am now 16 weeks post radiotherapy have had my pet ct scan results on Monday. As I am sure you know there are still some bad weeks ahead but I am proof that if me a meee wimp if a 61 years old can do it anyone can just take things slowly. Remembered yiuve had hospital staff every day although we all look forward to that first week it’s a hell of a shock to loose the comfort blanket of the hospital.

    one word of advise drink drink drink try for at keastb2/3 litres theoughtbthe day as hard as it might be 

     

    good lick

    keep in rouch

     

    hazel

  • Thanks Hazel I hope your results go well obviously, Im no kid myself and will be 61 in April.

    I`ll keep the fluids going in thats really good advise, it works!

     

    Dave

     

     

  • Am sure Eric  is fine he doesn’t come on the site every day think he has chemo as well today so probably sleeping.

    good luck with tomorrow 

    hazel

  • Hi Dave any questions just shout out . I brought my mask home she’s hanging in the garage are you bringing yours. 

    I am 62 in February omg nearly grown up !!!! So I would have been a school year in front of yiu. 

    Hope julie is  getting read to becomes ti become nursemaid , word of warning g John and I did have words around the first few weeks and we’ve been married 40 years in June’s and never argue it but it stretches everyone to almost breaking point. It was Jihns inability Tom ok eggs to my exactungbstandards we laugh at it now 

     

    h n j 

  • I cant praise Julie enough and this has brought us closer if anything...and Im a bad patient because Iv got no patience, I might bring the mask home in fact I might give it Julie as a present :)

  • VHi Dave n Julie 

    John  was so frustrated that the only thing he could do for me was to drive cook shop clean he couldn’t protect me from any of the pain .On the last week the radiotherapy team let him come in and help them to strap me down on table I think that when  he saw that they were somcaring it helped him. But being a strong man he found it hard to express his fear at losing me just as we had both retired to enjoy the fruits of  our labour .he wanted to shout but like he said it wasn’t him that it was happening to and he wanted it to be him , you know how painful and tiring it all is Johnjusr felt useless we are ok now just wait8ng for Monday 

    Venezia yes I names the mask !!! Hangs in the garage as a permanent reminder of how she saved my life .

    night

    haEl 

  • Hi Hazel

    Somehow I have managed to delete half the posts lost the last one you sent.

    Like you had a rotten night and probably no more than 2 hours sleep. Still trying not to resort to strong painkillers. Yesterday, the Doc  put me on Enantyum 25 mg, its an anti inflamatory and a mild pain killer. Tried one this morning and it seemed to work, certainly reduced the pain and helped with swallowing.

    And you are absolutely right, I am spending most of my time in bed trying to catch up on sleep, you just feel so much better when you have slept well

    Speak soon, regards Eric.

  • Hi Eric 

    have replied to your request hopefully unfinished it top right corner.

    re painkillers I was the same but after oncologist gave me a good talking to and said the clue is in the name painkillers .Our bodies are going through hell and need all the help they’d can get m the strongest I had from late Augustbwas 8 x 30 mgcodeine combined with 500 paracetamol plus topped up with liquid oramorph I was never drugged but it took the pain away and allowed me to sleep.

    i tried stopping in November roosoon, butbteied again mis secemeber and have done it very very slowly now in 6x 8 mg codeine paracetamol and 2 paracetamol with the aim of when we get to Spain just being in paracetamol.

    i have nompain it’s justbthe sleeping now butbthats my body sAying where’s the codeine itbwillmoass

     

    sleep is a necessary evil tonrecovery along with food

    Hazel 

  • Yes he is less frequently on, chemo must be a drag.Got my first small roof of mouth sore after only 7 sesions, bit of a worry so early. Well done Oscar been following you too, great progress.