Hi Eric

ouch yiuve certainky been through it to get to this now  stage .i am now 16 weeks post radiotherapy and have my pet ctbscan in Thursday. Eating and drinking doesn’t get harder but eventually comes back one word if advised use yiu right peg butbtey and maintain your swallow index only sips if water will make it easier down the kine

good luck

keep in yiu h

hazsl 

Thank you, have a happy new year , let's hope we both get promoted this year.

I will keep you posted on how my treatment  is going.

Gary

Good luck Gary

shout out if you need to know anything or just a general rant

hazel

Thank you Hazel, really  appreciate  it,

Happy  New year.

Gary

Hi Hazel

Best of luck for Thursday, let me know how you get on, I assume you will have to wait a few days for the result.  Did your RT affect your taste buds. If so how long did it take for them to recover. My last RT is on 14th Jan and my last chemo on 10th Jan so you are a good 18 or so weeks ahead of me. Did you get any problems re Mucas or mouth ulcers.

Best regards Eric.

Hi Eric

thamk you. Will do am due at hospital at 1245 for pet ct scan my Radiotherapy finished 31 August .i will get the results on the 14 th  January at 1230 we have flights booked to Murcia the 19 th !,, for 3 weeks then ferry booked end of February for longbstay  we renta longvteem an apartment in the Mar Menor quite often get to el fondo the nature reserve near Crevielliente  think you are in that area ? U never know we may meet up at something point. 

Inhad mouth ulcers in my right cheek from week 2 my next back tooth disappeared for 12 weeks into my cheek which was painful every time I took a tabketbor sucked food n drink but git used to it. .i also had a radiation burn the full length of my tongue from week 4 up until 3 weeks ago. My oncologist knew that would happen as the margins he wanted to take couldn’t avoid my tongue he didn’t tell me until radiotherapy was over it has  now atrophied and is a white lumpy jelly  nice. But  I can eat and drink not alcohol but that’s fine I practically stopped drinking 10 years ago.

mucus oh yes I had the stringybwallpater paste for weeks , then put on carbusistine which dried it up but then u are left withith drybmouth so it’s the worst if 2 evils.

i never lost tats buds which again is a good/bad thing as I could taste everything and it’s wasnt always pleasant inhad home made soup one day tasted like I had emptied the Mediterranean Sea in it. Wher people who lost taste could eat anything  but in long run some are still struggling with taste and mine is ok. 

Dont know if you’ve read my blog 

www.radioactiveraz.wordpress.com

fingers x for you keep in touch .

for the ulcers I was prescribed Gelclair £74/for a weeks supply! Didn’t work for me but lots swore by it 

hazel

Just an update from me, im nearing the end of week 5 of 6 and can still taste fine, swallowing surprisingly good if I dont try to swallow large amounts..I had toast yesterday :), after losing 8 lbs last week Im now steady again, taking plenty of fluids on which is vital to recovery. Iv stopped taking the Oramorph as I hate being constipated, still on the liquid Paracetamol and Pregabalin.

I must be a veteran now as Im seeing new patients starting treatment in the waiting room, just 8 sessions to go and feeling ok ish. 

Dave

thats great Dave and good to hear you doing so well ..

hope this keeps up and and let us know of your continuing progress

kind regards

ian

Good luck it’s a strange feeling coming towards the end if treatments and seeingbthe new people Just starting.

i had my final pet ct scan today results  in 10 day a time .was so strange going back to them cancer centre feeling so well ,when I think back to my last week if radiotherapy,radiation burns on neck 3 rd degree and tongue. My aim tidaybwas a sandwich from boots and I did it ,it’s  the little things 

hazel