It's lovely to hear from you again. I noticed you posted here two years ago and you were worried at the time that you would have to give up driving and it was making you anxious. How have things been on that front for you? I am so pleased to hear you are cancer free but it's a shame that the tingling and numbness issues in your feet have persisted.
We do have some information on our website on nerve changes and cancer drugs which might be of interest to you. It includes tips on how to treat and how to cope with these nerve changes.
We've had several members post on the forum before about similar symptoms of tingling and numbness caused by treatment and I hope you will get chatting here to others who have experienced this and that you can exchange some tips or suggestions about how to deal with it on a daily basis. One member [@tigercub] has been posting regularly on the forum about neuropathy on feet as for example here and [@river56] also mentioned on the same thread experiencing tingling. These are just a few examples and if you use the search function on the blue banner at the top of our site and enter 'tingling feet' or 'neuropathy' you will be able to find many more and respond to any threads which may be relevant to you.
I hope this helps and that you can soon connect with other people here who have also suffered from these issues long term.
I have had 2 bouts of breast cancer in the past nine years. The first time I had a lumpectomy followed by Tamoxifen for a year. When I had a second primary within the same breast within a year, I had a double mastectomy followed by Letrozole for 6 years. I stopped taking this a year and a half ago.
I didn't have any radiotherapy or chemotherapy, but I was diagosed with Diabetes shortly after my second bout of breast cancer. Four years prior to being diagnosed with cancer I was driving home after a conference and noticed that the front of one ankle and calf was bright red and 'burning'. This was the first time I had any pain in my leg (2006).
Since then this pain has spread. It gradually worked its way up my leg to below my knee, above the knee, up to my thigh, down to the soles of my feet. It then started on the other leg in exactly the same pattern. I would describe it as more of a 'burning/searing type pain', which is now only occasionally accompanied by inflammation, although it can occasionally manifest as pins and needles. Whether this is due to my Diabetes or my Cancer is hard to tell.
I tried all sorts of treatment for this. The most effective was Gabapentin, which I took for quite a few years. Unfortunately, I then began to get side-effects and had to stop taking these tablets. I haven't found anything that works since.
Have you discussed this with your care team. They may be able to offer you something that would help you out.
I do hope that it settles down for you. Please let us know how you get on. We are always here for you.
