Hi

I've just been (Nov 2018) diagnosed with kidney cancer, with some possible activity in my lungs that needs investigating. First meeting with the consultant is on Wednesday. 

In May 2011 my wife was diagnosed with stage 3b, type 3 Ovarian cancer, and passed away in April 2014. She had a tough 3 years, and my step daughters, granddaughter and I are still traumatised to some extent. Part of me is very matter of fact about the next steps and what Im facing, but still scary.

My mum had a kidney tumour removed in 1991 and subsequently died of Lung cancer in 2006. So part of me is worrying about heredity links, genetic causes etc for my brothers and their children.

So, unsettling times.

  • Looks like we both got the same news yesterday, but for different parts of the body.  I stared into space last night when I got home from the hospital.  I went on line with phrases from my diagnosis summary and sat and stared at those too.  Couldn’t really take it in.  I got some sleep but woke early with it being the first thing I thought of and stared into space again.   

    I know I’ve got to go through it.  I’ve been on the other side for my best friend who died nearly 15 years ago.  She said it was always good to talk to me as I talked about it with her as if it were just flu.  She said that so many people didn’t know what to say and she just wanted to talk.  I remember talking into the early hours when she came to stay with me when I was taking her to her appointments at the Royal Marsden.  We’d met at work some time before and it turned out to be a blessing because I lived just 5 mins drive from the hospital and to come and stay with me was a relief to her.  I was with her when she was given the diagnosis and through many of the appointments from then on.  I know she’d be doing the same for me if she were here.  

    So, here we go.  A difficult journey awaits.

  • Hello gus (and hello again calley).  I am guessing your use of the word "unsettling" is an understatement.  I will curb my natural inquisitiveness and let you both tell us just as much as you want about your diagnoses and planned treatments (when decided).  Because I like to know that people have support I tend to ask questions but perhaps  I should say tell us as much or as little as you want but don't be afraid to tell us lots if you want to do so.  Everyone handles this differently and in their own way.  Annie

  • The long version of where I’m at is in my “introduce yourself”....which for those of you who don’t know as I didn’t that you can access by clicking on my user name calleyh on the left hand side of the screen.  New to all this..... I just couldn’t face typing it all again.

  • I had just read your introduction before seeing your further post Calley.   You seem to have moved away from everyone you know but don't despair of finding people to talk to. First of all you have come here where there are loads of people more than happy to talk, about you and about themselves.  I see you have already had people here making contact which is what this forum is all about.  You might like to also set up an account on the MacMillan website so that you can chat with people there and share experiences of similar situations.  Come and talk to us whenever and as often as you like.  Read the posts and join in the conversations.  There is a lot going on but do come here whenever you a bit of online support.  Annie