Devastated and scared

i never expected to be posting on a cancer support forum, but I’m here and feeling very weird!

Back in 2012 my wife (now 60, I’m 56) was diagnosed with breast cancer and we went through the trauma of treatment, full mastectomy and lymph clearance, she had pre-surgery Chemotherapy and post surgery radiotherapy. She has struggled with living with the mastectomy as I don’t think they did a very good job with the surgery so her scarring has always caused her discomfort. At the time, we had very little support from Macmillan, the breast care nurse assigned to her was appalling and despite asking for emotional support we never really received any.

For the past 6 years or so we have done everything to get on with life. My wife took early retirement during her cancer treatment as her company (a big U.K. financial institution) were not being particularly helpful and she had been put under threat of redundancy anyway. We have no children as we were career people and it just didn’t happen!

Roll forward to late September 2018 and my wife picked up a cold or infection of some sort and had an annoying and persistent cough so I nagged her to go to her GP which she eventually did. The GP, thinking she would put my wife’s mind at rest sent her for a chest X-ray and this is where it all started to go horribly wrong for us again. The GP phoned her (on the morning of her 60th Birthday or all days) to ask her to come in for an urgent appointment.

The GP said there were some small ‘spots’ showing on one of her lungs and referred her for a fast track CT scan which happened 2 weeks ago. We had a follow up meeting with a chest consultant who was very nice but somewhat vague as the ct report hadn’t been completed and cross-referred us back to the breast care team as he believed it was likely to be metastatic disease.

Yesterday, we had a meeting with the consultant from that team who confirmed it was likely to be cancer and that whilst there were small areas in the lung, it was her liver which had what appeared to be large areas of decease apparent. The next stage is a meeting with the oncology consultant and also to have a liver biopsy. Other than this cough, which is slowly clearing up, she has no apparent symptoms, no pain, nothing to indicate there is a problem.

So that is the history. What that doesn’t say is how absolutely devastated we are. I don’t really have any words to express what I’m feeling inside just now. I know I need to be strong for her but I’m typing this with tears rolling down my face. We’ve been together for 30 years, many of my old friends have drifted away, usually when they have had kids ... suppose we were seen as being a bit odd not having any. I don’t have any family now, parents passed away, no brothers or sisters. It was just us against the world. Now I have the dreadful prospect of my lifetime friend, companion and lover being ripped away from me.

I’m not really sure what to do or how to help other than just being there, but me being upset doesn’t help her at all. Feeling just so useless.

  • Hello Trapdoor,

    I am so sorry for your wife's diagnosis and having this reappear after you seem to have been doing so well.

    Its a horrid disease and devastes so many and not only the one diagnosed, but parrtners/family as well.

    I pray that there is a successful treatment plan and although not pleasant to go through another set of treatment, hope you have light at the end of the tunnel.

    We all lead different lives and not all have kids and a wide circle of friends. All my friends have drifted away and without my partner I would be lost as well.
    I understand you may feel useless, but your not and just being there means a lot. I am diagnosed with throat cancer and my partner feels useless and feels she cant do anything, but there are many practical things that help and the main one is just being there for each other.

    I am terribly sad for you and wanted to reply to your email but I also hope there is light at the end of the tunnel with the appropriate treatment.
    Please dont be or feel alone, as there is really good support on here  and i hope you keep posting to update us on developments and progress and also keep us up to date on how you are as well.
    You are not alone and please keep in touch.

    Stay strong and I am here as a friend if you ever wanted to private message and just chat away. Anything that finds comfort for you both and I am sure others will contribute to the post to offer further support.

    kind regards

    Ian

  • Ian, thank you for taking time to read my outpouring and for replying. And so sorry to hear about your diagnosis. I hope it’s something that you and your partner can work through.

    We are just playing the waiting game at the moment. Oncologist appointment Thursday and this awful liver biopsy.

    I have massive split feelings about this. On the one hand I’m ‘pleased’ that she will be getting treatment for what is going on inside her, on the other I feel guilty because if I hadn’t insisted she went to the GP, we’d currently be enjoying life in blissful ignorance, certainly until other symptoms presented. Even though she was on continuing monitoring, it would seem that they don’t consider looking for evidence of metastasis. I was shocked at this as surely it’s the most likely recurrence. But what do I know? I’m just the awkward husband who asks questions the medics don’t really want to answer!

    i don’t know how often I will drop in here, but it’s certainly helpful that there are people who understand and will ‘ talk’ to me.

  • Hi Trapdoor,

    Only my opinion, but its a good thing you went to GP as although might have been a little longer n blissful ignorance, the sooner symptoms caught, the better chance of treatment and success so you definately did the right thing.
    Please drop in anytime and chat whenever you feel like it or up to.

    Wish you both well and please keep in touch and keep us up to date with how you both get on.

    Kind regards

    Ian