Hello, my name is Linda. I've been recently diagnosed with Essential Thrombocythaemia and Polycythaemia Vera - conditions which fall into the category of myeloproliferative neoplasms (MPN). I'm on a mild chemotherapy treatment in tablet form (hydroxycarbamide) and a tablet to manage the production of uric acid (allopurinol tabs). It's been a real emotional rollercoaster since my diagnosis. I'm finding it hard to believe that "this is happening to me" - things seem in "high relief" and I'm feeling very much like I'm standing "outside of things" - looking on... The scary thing really, is not knowing what to expect, I suppose. Anyway, I'm doing my best in the meantime to carry on with my life as normal. I wonder if anyone can advise if they've been on this treatment, and if so, how has it made you feel, physically. I'm feeling head-achey most of the time and quite nauseious and tired. Also, my consultant has prescribed this treatment for an initial six weeks. Does anyone know if I should expect to be on treatment indefinitely?
Hope this makes sense - it's been a bit nerve-wrecking even posting this...!! But thanks for listening :)
Linda
