Newly diagnosed with breast cancer and waiting for Scans

I’ve just been diagnosed with stage 2 breast cancer but waiting for scans to check if it has spread elsewhere, I don’t feel well and feel like it has spread and am really worried what the results will be. At the moment it’s a large lump and has spread to the lymph node so starting chemo first, even though I pretty much knew it it’s been a very tough week 

I am positive about the treatment but just terrified this is going to change when they see if it has spread... the waiting is hurrendous... trying to have fun with my kids,work and keep busy but just walking around in a daze and trance... 

Parents
  • Hi Olivia

    I’m so sorry to hear about your recent diagnosis.  I have also recently been diagnosed with grade 2 breast cancer and can totally relate with you on the horrendous waiting on test results. I’ve never experienced anxiety like it and my constant Googling hasn’t helped matters! I’ve two teenage daughters, 19 and 15 so with them being older have explained everything to them. It’s still very hard though keeping a brave face in front of them. 

    It’s looking like I’m going to be having a mastectomy and I also find out results on Friday. I’m hoping he will be telling me the next steps as I think I will feel a bit better for knowing what’s going to be happening and when.

    Good luck for Friday.

    Alison x

  • Hi Alison,

    I just wanted to wish you all the best for Friday. I am glad that you and Olivia have met up. You will both find it helpful to have someone going through the same thing at the same time and should be a great support for one another.

    As I have already told Olivia, I had a lumpectomy 8 years ago followed by a double mastectomy 7 years ago. I was terrified of what might go wrong with my last ops, but it was really straightforward.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

     

     

     

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    HI Kerry,

    I know that it's hard not to, but try not to overthink things. Most breast cancers are treatable and outcomes are improving all the time.

    I hope that all goes well tomorrow.

    Kind regards,

    Jolamine xx

  • MRI scan booked for next Tuesday then the results appointment, have to say I am absolutely petrified at the moment had a big meltdown yesterday and my head is swimming at the moment with so many scenarios flying around

  • Hi Kerry,

    That's great. The sooner you have it, the sooner it'll be over. Try not to overthink things meanwhile. How did your CT scan go?

    Kind regards,

    Jolamine xx

     

     

  • Hi Jolamine

    Thanks for the reply, CT scan was okay only took about 5 minutes so really quick, not sure if that's a good or worrying sign, but have a bad back at the moment but heat pack is easing it so hopefully just stress and my head is really fuzzy at the minute but just putting that down to over thinking everything and lack of sleep.

    Hope you are well xx

    Kerry

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    Hi Kerry,

    The CT doesn't take long, but I'm glad to hear that you've had this done. It's good to hear that heat is helping your back. It's amazing what sresss can cause us to believe and lack of sleep doesn't help either. It shouldn't be that much longer now until you know what's what.

    Kind regards,

    Jolamine xx

  • MRI scan completed today, really anxious now and pain in my shoulders and tingling in my breasts at the moment and good old Dr Google I have the worse case scenario in my head again so stressed like mad, had a day in the office on Monday and because I was busy really weird no aches & pains so it is all in my imagination and stress related. But convinced myself it is so bad and a right mess today

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    Hi Kerry,

    I am glad to hear that you had your MRI today. Did they tell you when you could expect to get your results? Try to find a pastime to keep yourself busy until your results come through. Just remember that it isn't bad until you're told that it's bad. Your experience at work just shows what stress can do where pain is concerned and, I guess that it's playing with your mind in the same way. Try to give 'Dr Google' a wide berth for the next couple of weeks.

    Kind regards,

    Jolamine xx

  • Hi Jolamine. 
    No they just said the results would be passed to my consultant, they have their MDT meetings every Tuesday and then the follow up meeting will be on a Wednesday, so hopefully next Wednesday or the week after. But all scans done and after being told a few days ago they were unable to book me in until the 27th May for my coil removal I have had that removed today, so just got to wait for the consultant appointment now, going back into the office until that appointment just to put some sort of normality into my days and hopefully reduce the worrying a little.

     

    thank you so much for all your support and I hope you are well xxx

     

    thanks

     

    kerry

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    Hi Kerry,

    I am glad to hear that you had your coil removed today - just shows what can be done and, so much better than waiting until 27th May! It is probably a good idea to get back to work and a sense of normality to help pass the waiting time until you get your results.

    Don't forget to let us know how you get on.

    Kind regards,

    Jolamine xx

  • I have had Breast cancer 22 years ago now it's back in different Breast im71 and had a ct scan week last Friday to see if it has spread I have not slept since with worry I am so stressed and frightened.I had chemo and radiation treatment last time and took Tom tabs for 5 years I have one beautiful daughter and she is out of her mind with worry .I would like to know many people get a good result with a ct scan I feel more frightened this time around than last .I feel ok in myself I am eating ok cleaning shopping and ironing but I think this time around it made it worse as I lost my husband 10 years ago with Lung cancer and having terrible problems with a neighbour that lives by me she has threatened me sent me disgusting letters saying she hoped my cancer would come back so any help or advice please would be helpful thank you

     

     

     

     

     

Reply
  • I have had Breast cancer 22 years ago now it's back in different Breast im71 and had a ct scan week last Friday to see if it has spread I have not slept since with worry I am so stressed and frightened.I had chemo and radiation treatment last time and took Tom tabs for 5 years I have one beautiful daughter and she is out of her mind with worry .I would like to know many people get a good result with a ct scan I feel more frightened this time around than last .I feel ok in myself I am eating ok cleaning shopping and ironing but I think this time around it made it worse as I lost my husband 10 years ago with Lung cancer and having terrible problems with a neighbour that lives by me she has threatened me sent me disgusting letters saying she hoped my cancer would come back so any help or advice please would be helpful thank you

     

     

     

     

     

Children
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    Hi Lyndia,

    A very warm welcome to our forum.

    I am so sorry to hear about the situation you find yourself in. Can I ask what type and grade of breast cancer you had last time? I  am 72 and have had 2 bouts of breast cancer in the past 12 years. I agree that the second is eveny more scary than the first. 

    I am not a doctor, but looking at things rationally, I would be less worried to have a new cancer in a different breast, than to have one that had spread in my original one. The fact that you are keeping well and able to do all of you day to day chores is heartening.  Have you been for tests yet or are you waiting for an appointment at the breast clinic?

    You have been through such a lot over the years. I am so sorry to hear about your husband, although I'm glad to hear that you still have your beautiful daughter for support.. Try not to worry about your neighbour. Her actions sound disgusting. Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx