Newly diagnosed with breast cancer and waiting for Scans

I’ve just been diagnosed with stage 2 breast cancer but waiting for scans to check if it has spread elsewhere, I don’t feel well and feel like it has spread and am really worried what the results will be. At the moment it’s a large lump and has spread to the lymph node so starting chemo first, even though I pretty much knew it it’s been a very tough week 

I am positive about the treatment but just terrified this is going to change when they see if it has spread... the waiting is hurrendous... trying to have fun with my kids,work and keep busy but just walking around in a daze and trance... 

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  • Hi Olivia

    I’m so sorry to hear about your recent diagnosis.  I have also recently been diagnosed with grade 2 breast cancer and can totally relate with you on the horrendous waiting on test results. I’ve never experienced anxiety like it and my constant Googling hasn’t helped matters! I’ve two teenage daughters, 19 and 15 so with them being older have explained everything to them. It’s still very hard though keeping a brave face in front of them. 

    It’s looking like I’m going to be having a mastectomy and I also find out results on Friday. I’m hoping he will be telling me the next steps as I think I will feel a bit better for knowing what’s going to be happening and when.

    Good luck for Friday.

    Alison x

  • Hi Alison,

    I just wanted to wish you all the best for Friday. I am glad that you and Olivia have met up. You will both find it helpful to have someone going through the same thing at the same time and should be a great support for one another.

    As I have already told Olivia, I had a lumpectomy 8 years ago followed by a double mastectomy 7 years ago. I was terrified of what might go wrong with my last ops, but it was really straightforward.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

     

     

     

  • Hi Alison, 

    so glad to hear it all went well and you’re back to a. Bit of normality...the last few months have been so crazy

     

    the timing of my treatment have worked out well so feeling my best for the chisrmas period and looking forward to some fun with the family and get really for the next phase of treatment.

     

    have a great Christmas and a happy 2019!! 

  • Hi

    I really hope you don't mind me joining in on your thread. I was diagnosed with stage 2 breast cancer on Monday with 2 lymph nodes. 

    I came across your post about waiting for more tests and I am feeling exactly the same way you did. I don't feel well, aching all over and terrified that the cancer has spread.

    Reading your posts has given me some encouragement. I am glad to hear that you are doing well. 

    Also I am 41, so just a little bit older than you. 

    Xxx

  • Hiya, so sorry to hear about your diagnosis, such an awful thing to go through, I hope you and your family are ok. I was the same and didn’t feel well in myself and thought the worst but I guess a lot of it is psychological and all the stress prob causes some of it so try and not worry and all the best for positive results, the waiting is the worst  

    have they told you what your treatment will be?

    whtever it is you will get through it and get rid of it and anything you want to ask feel free

    take care and keep in touch xx

  • At the moment they have said chemo first before mastectomy. Is that similar to you?

    I have a day off from tests today, bone scan tomorrow.

    Very nervous about that as every bone is aching!

    Xxx

  • Hi Luna

    I’m so sorry to hear your diagnosis.  I agree with Liv re the stress. The shock and the waiting for results is such a stressful time.  I’d never experienced anxiety on that scale before and didn’t realise the physical pain it can cause. 

    I had a mastectomy 2 months ago and am doing really well, so if you have any questions on that please feel free to ask me.

    Good luck tomorrow.

    Alison x

  • Hi Alison

    Many thanks for your reply, it's so good to hear that you are doing well, gives me hope. 

    I've never felt anxiety like this before either. It's a journey into the unknown and I'm finding it hard to deal with. It's the fact that it is in my lymph nodes that is terrifying me. Does this mean its spread? 

    Coming to terms with losing my breast will be another huge obstacle. I have big boobs and feel like I will be losing half of me. 

    Will or are you considering reconstruction? 

    Xxxxx

     

  • Yes sounds the Same as mine is having 8 cycles of chemo and then surgery... if you want to ask any young about the chemo please do.. do you know when you start? 

     

    Good of luck tomorrow xxx

  • I've no idea when I start. I feel so in the dark at the moment. I don't have another appt with consultant till 6th Jan. When I've been told I'll find out more about my treatment plan.

    Hope you don't mind me asking, what symptoms were you having prior to bone scan, ct etc?

    Xxxxx

  • Hi Luna

    It’s the not knowing that is the worst.  Once I knew what they were doing and I had a plan of action I started to feel calmer. 

    I rang the breast cancer helpline a couple of times when I was first diagnosed and stressing out and they were lovely and really helpful. Their number is 0808 800 6000.

    My sister’s friend went through the same this time last year. She had lymph node involvement too and had chemo first and then a mastectomy and was given the all clear in September.

    I had a Diep Flap reconstruction at the same time as the mastectomy and it is amazing what they can do now. I’ve got an appointment with the plastic surgeon at the end of Jan to discuss symmetry surgery and nipple reconstruction. 

    Let us know how you get on tomorrow xx

  • I am so scared about tomorrow. I feel physically sick. I just want them to tell me it hasn't spread and then I can focus more and start concentrating on getting better!

    Xxxxx

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