Hi I have very recently (3 weeks ago) been diagnosed with Ocular Melanoma in my left eye. The tumour was too large to treat and I therefore had enucleation (removal) of the eye last Wednesday at Moorfields eye hospital in London. I have found the support group Ocumel UK who have been great - however, being a rare cancer thereare not too many members - and they are spread far and wide. I am struggling with having no one to talk to about 'what next' I am waiting for the results from the biopsy and genetic make up of the tumour which will inform my long term prognosis. I know I will be monitored for life, although the MRI and PET-CT scans taken last week are both thankfully clear. Family seem to think that they treat the eye and you are 'fixed' - how do I explain this to them without coming across as negative and only focussing on the worst case scenario. I am determined to fight this but I have so many feelings and emotions and no real outlet for them. I woneqr if it is worth me joining a local,cancer support group or are these generally linked to a specific type of cancer?
