Hi Noeyehere

Apologies for using your forum name but you are happy with it, I presume.

I'm sorry for your diagnosis and ongoing treatment especially the loss of your eye which can be emotive to many.

I just thought I would bump your posting as it has got a little left behind and maybe someone new will see it.

Hoping the cancer has been 'fixed' and that the continuing monitoring will keep it that way.

Best wishes

David

I am assuming no one has any experience with this type of Cancer due to the lack of responses?  I have found Ocumel UK where I have been able to speak to people going through a similar experience to me - I just had hoped there would be more support in general, currently I feel abandoned by the world, medical profession included.  I have an appointment tomorrow with the Ocular Oncologist so maybe I'll get some answers - who knows?  I am just amazed there is no support or counselling offered - we'll just take your eye out and monitor you six monthly but when it hits your liver your basically finished!  In all truth the medical staff have been great with everything except addressing the emotional impact of this disease - family and friends all assume once the eye is removed you are 'fixed' which is far from the truth which leaves no one to talk to.  I know trawling the internet is not the best thing to do but night after night when you cannot sleep it is the only information out there - I do generally stick to Cancer Research, Macmillan and Ocumel but I have found myself reading scholarly articles which I don't fully understand so I end up focussing in the negatives.  Aologies for the rant but another night if no sleep and I just don't know where to turn.

First of all, apology for not checking if you had any replies. Few of us here are professional counsellors, we are led here by circumstance and posting can be very irregular. When I look at new posts I try to find ones with no replies first and hope I have something productive to say. In your case you had not received a reply for some time so I bumped you. Possibly not a good idea as it seemed as if someone was usefully replying.

Your cancer is rare and I think there may be few current members with your experience, Many of us are 'fixed' with surgery and for instance lose the use of part of their body for a few weeks or have more radical excisions. Suddenly losing an eye is so life changing that few can share that and so I believe may be the reason for no response. But as you have said you were looking for emotional support.

I can agree that once the surgeon has had his way many people assume you are fixed but internally it is the future uncertainty is the most draining for me. I have tried Google Scholar and unless it is your field of study it can be too difficult. I am waiting for my oncologist in a week or so and I hope that will give me the best opportunity to understand what my choices are and to make the best one.

Maybe tomorrow's meeting will help you more than all your searching and reaching for support.

If you are okay with coming back and talking about it please do.

Kind regards

David

First of all, apology for not checking if you had any replies. Few of us here are professional counsellors, we are led here by circumstance and posting can be very irregular. When I look at new posts I try to find ones with no replies first and hope I have something productive to say. In your case you had not received a reply for some time so I bumped you. Possibly not a good idea as it seemed as if someone was usefully replying.

Your cancer is rare and I think there may be few current members with your experience, Many of us are 'fixed' with surgery and for instance lose the use of part of their body for a few weeks or have more radical excisions. Suddenly losing an eye is so life changing that few can share that and so I believe may be the reason for no response. But as you have said you were looking for emotional support.

I can agree that once the surgeon has had his way many people assume you are fixed but internally it is the future uncertainty is the most draining for me. I have tried Google Scholar and unless it is your field of study it can be too difficult. I am waiting for my oncologist in a week or so and I hope that will give me the best opportunity to understand what my choices are and to make the best one.

Maybe tomorrow's meeting will help you more than all your searching and reaching for support.

If you are okay with coming back and talking about it please do.

Kind regards

David

Thank you