Our journey begins

hi I'm Jane and have been married to my husband Owen for 18 years. I'm a nurse and work with elderly palliative care so know about the end stages of this journey we are just starting out on.

Okay this is what's been happening so far.  My darling husband had a seizure out of the blue 2 days ago he has had CAT scans and we received a devastating diagnosis of lung cancer with multiple secondaries in the brain. He has had no symptoms until the seizure and two days ago we were going about our life as normal. He has to have a MRI scan and a multidisciplinary meeting to decide the course of action and treatment.  Now discharged from hospital unable to drive due to the seizure and work looks unlikely for him  he has steroid tablets for brain swelling and tablets for seziures. We have begun a long and difficult journey and me and family will support him as much as we can.

Life is going to be difficult and I don't know if I myself will be able to work as this disease progresses  I am optimistic about the future but also know that Owens cancer has advanced to probably palliative stage before we even knew about it.

 I love him dearly and we have cried together and have began to talk about putting things in order as our remains time together  will probably be short.    

To all of you lovely people out there reading this and facing similar journeys all i can say is be strong for each other, be honest talk about how you feel and don't be afraid to show emotions.Share your heartache with others and seek support wherever you can    

God bless all of you caring for a loved one or fighting cancer  I hope one day when we reach journeys end I will be able to go on and pick up the threads of my life , but for now it's all to raw and I will be by my husbands side as we begin this journey into the unknown 

 

 

 

  • Yours is a incredibly moving, and tragic, story Jane. I wish you and your husband every strength. xx Harry

  •  So sorry to read of  this journey you and your husband are about to embark on.   Their will be many stages as you know you both will be going to go through , so in these rough days ahead i wish you  hope, and strenght and courage to see you though this journey,  and love will see you through , take care . xx  Barbara

  •  

    Hi Janus,

    I see that this is your first post on the forum, so I extend a very warm welcome to Cancer Chat. Like the rest of us, I’m sure that you would rather be anywhere else but here.

    I am so sorry to hear about your husband’s recent diagnosis – what a shock it must have been to get this diagnosis virtually out of the blue. Nursing in palliative care, you will know only too well how this progresses. I felt the same when I was first given the devastating news. I have cared for both of my parents, several family members and close friends and was diagnosed with breast cancer 8 years ago. I was diagnosed with a second bout the following year and am now waiting to see the dermatologist with a mole on my back towards the end of this month.

    My hubby had to stop working at 50, which came as a terrible shock at the time. He had a quadruple by-pass, followed by pneumonia, diabetes, a stroke and now chronic heart failure. He has been in hospital twice in the last couple of weeks, as we try to get his medication on an even keel. I cannot say that it has been easy, because it hasn’t, but we’re coping and have been now for 22 years.

    I am self-employed and had always intended retiring at 50 myself, but we just had to reverse roles. I am involved in one of the professions allied to medicine and am still working, although I have had to reduce my workload when I was diagnosed.

    I feel for you both. You have mentioned much of the advice that we give to the newly diagnosed and I hope that you can manage to follow this advice yourselves.  It’s one thing giving it to patient’s but altogether another matter when it comes to putting it into action yourself.  I am glad that you can both communicate your feelings openly to one another – this makes such a difference to how you both cope with all that is happening.  Do you have any family or friends who can support you through this?

    Don’t just worry about getting your things in order, but try to make some memories whilst Owen is well-enough to do so. Is his care team considering giving him chemo to try and slow the metastases or is he just to keep on taking the tablets?

    Do you have any further appointments with his consultant, or where have you been left with follow-up?

    Please let us know how you get on. We are always here for both of you whenever you want to talk.

    Kind regards,

    Jolamine xx