Urgent referral after ultrasound - trying not to worry

Hi there,

Following a transvaginal ultrasound on the weekend my GP called to tell me that she was making a 'fast-track' 2 week referral to the gynaecologist (they've now also called and I've got an appointment Wednesday next week). It's knocked me for six a bit and although I'm thankful that the wait isn't too long it feels like forever and I'm finding it tough, knowing that the 2 week referral can be because cancer is a possibility.

I've been getting symptoms (spotting and a bit of pain in my pelvic area) for around 6 months and in October had the most excruciating period pains and heavy bleeding, which has happened every month but one since. I knew something was up as that's not normal for me, so saw the doc in Feb, who referred me for the ultrasound. I'd convinced myself that my symptoms pointed to endometriosis, so when the ultrasound technician mentioned that I'd be referred to a gynaecologist to talk to me about my uterus lining, and she seemed surprised that I hadn't been experiencing symptoms for longer, I figured that maybe it was endo.

Then I got the call from my GP yesterday to say that the ultrasound showed thickened uterus lining and said she was making an urgent referral to gynaecologist, where they may do MRI or hysteroscopy. She mentioned a one-stop shop, not sure what that means? She then mentioned something about that they may find it's fibroids or polyps, but that they need to rule out cancer too. It was the secretary who called to book me in for the gynae appointment, and she said I'd be sent a letter with more info, so I guess that may give me a better idea of what tests they might do and what will happen at the appointment? 

Tried to talk to my mum about it to relieve my worries but she lives a long way away and is quite matter of fact about medical issues (she had problems with fibroids and had to have a hysterectomy, so has been through similar), which I do appreciate but I felt I wanted to be able to talk her about it more. 

Sorry for long post, would really love to hear from anyone who's been through/ going through similar. Just reading other's posts has been a big help.

Liz

Parents
  • Hi Bethza27. Welcome to the forum.

    I should mention I have no personal experience of gyne problems because I have a different set of equipment! 

    It's a bit alarming when you get sent on a two week "urgent" referral.  However, the reality is that GPs are encouraged to use these pathways when someone meets particular criteria. The idea is to catch any cancer as quickly as possible, but statistically only 1 in 10 of these "urgent" referrals turn out to have cancer once all the tests are completed. I personally have been sent on three of them.

     When you go for the first appointment, you'll be assessed and a series of tests decided. In practice, everybody who is referred usually gets the full gamut of tests, so you'll probably get an MRI, plus a few others. Don't be alarmed, you're not being selected for special treatment. When the first test (or first battery of tests) have been done, you'll be called for a follow up, and don't be surprised if further tests are scheduled. Again, don't be too concerned, since they are as much to rule cancer out as to rule it in. So while this is obviously a worrying time, try not to be too worried. Your doctor is being ultra cautious.

    Now let me tell you about the three urgent referrals I've had.  One was when my irritable bowel flared up and I had repeated attacks of diverticulitis. I was urgently referred for a colonoscopy, which proved to be clear. 

    Another was quite recent when I was urgently referred to ENT for a persistent sore throat. Over a period of a few weeks, I had a nasal endoscopy, an MRI, then finally a "panendoscopy" with biopsies under general anaesthetic. All clear.

    Finally, I was referred to urology for suspected prostate cancer because my PSA was slightly raised.  I was given an initial assessment and a cautious wait and see, with the proviso that I would be monitored and have regular hospital appointments. These appointments were every 3 months, and my PSA never settled down and never rose above 4.9.  Sometimes it would be a little higher, sometimes a little lower. Then, after two and half years, it suddenly rose. Now I was given a biopsy and MRI to check for prostate cancer. It was found, and as you might expect, it was very early stage. I had surgery to remove the prostate, and I haven't needed any follow up treatment. 

    So my personal experience is that these pathways have ruled out cancer twice, and on the third time found it very early so that I could have treatment in good time. 

  • Hi I wonder tele man do if you could give any advice I'm so anxious I feel ill I went through the 2w pathway for a colonoscopy I had that they took biopsies but in the wait I had to go for a ct scan which terrified me my biopsies came back fine I've still not heard anything from my ct but consultant is ringing me tomorrow that was already booked I'm terrified  

  • Hi Nsp12.

     

    I don't know which is worse: sitting in the waiting room to see the consultant, or waiting for someone to phone... 

     

    I've certainly done the one where you've had a series of tests and they've all been clear, so you're waiting for the result of the final test, and they're running late... so you're just sat in the waiting room for over an hour.  I was convinced it would be cancer - and it was all clear.

     

    I think that if I were in your situation, I'd probably fall back on my favourite five minute relaxation video: How to medidate in a moment

     

    Best of luck for tomorrow.

     

     

     

  • Thankyou telemando il take a look at that I've noticed you always give good advice so thought I would ask the phone call was booked in before the colonoscopy or ct but I feel like I can't cope

Reply Children
  • Thanks for the vote of confidence. It's much appreciated.

     

    For tomorrow, it might help if there's someone with you who can listen in as you receive the news.

     

    I'm not sure I can think of any other suggestions.

  • Hi got scan Monday and am awaiting results, I have had a emeterosis removed two years ago and have had a pain in pelvis and pain in back passage periods had got less frequently and are now 2 days most ,  I  have had a sore throat for nearly a year and still swaying to get checked . Am getting worried as scanner was asking lots of questions and took pictures of one side getting want in results, has anyone else had these problems ??