Hi all.

Iv not been well sic chirstmas and I had a scan yestoday .I asked the lady was all ok she just told me to make appointment to go in on tuesday.. But on my letter it says 14 days????

She asked which scanning if my lady time had changed.. 

Iv been in a lot of pain in my right side builds up but every day it's there some day wrose the others...3 weeks ago left side started hurting to i feel sick if I don't eat and when I eat I have lower back pain and my lady times are abit all over the place.. I'm so worried it's going to be something bad just have this but feeling and I'm not like that at all.. I was just wondering if anyone elsh been where I am .. thank you for taking the time to read my post k x

Hi, I felt the need to reply to your post as I'm sort of in the same boat. I've been in pain for about a year and a half, periods suddenly very heavy and bleeding plus strange discharge in between, my stomach is swollen like a balloon, I can't stop weeing and it hurts when I need to wee, my bowel habits have completely changed, I feel sick alot and struggle to eat etc. I had a scan recently, seen the same sonographer a few times and she always says all's fine just call to get the results in about 2 weeks, this time after transvaginal ultrasound she looked worried and said ' call your doctor in a week, make sure you call the doctor in a week!' I couldn't say much as my son was with me. The doctors called 2 days after the scan and said I need to speak to the doctor, he explained that I have endometrial thickness, an enlarged ovary and fluid build up, but that he wasn't going to refer me as I'd seen gynae recently and had another appointment in a month. My gynae appointment is soon. I had a c section a year ago and the scan result said possible adenomyosis so it's either a complete c section mess up or cancer. I have 5 children and I'm worried. When is your gynae appointment and did you get your scan results? Why do they leave us in limbo!? It's horrible. 

Hi all am new here but want to share my story too been since Xmas feeling poorly there’s me thinking time of the month again and again no can’t be bleeding after periods inbetween  periods after sex am lucky if am having 1weeek break telling you when I get it yes it’s heaven anyway took the bait went to gp told her usual symptoms bleeding cramp sore back feeling sick sore sides bloating up constantly in loo peeing so she done a internal bloods checked next minute she said ooohh ur ovires are filled eh excuse me what ? Then she insist I need a wee pelvis ultrasound so was there Thursday get it all done now Friday morning gp calls like 8am telling me a appointment is needed to go speak with her 3rd July now am really nervous !!sorry long post x 

Hi I’m new on here. I’m having similar symptoms. I had a pelvic scan 2 weeks ago tomorrow and they told me to check with doctor for the results within 7-10 days. As of Friday the results weren’t back yet, but a couple days after my scan I got a letter through with a gyno appointment which is tomorrow. 

I was wondering how you got on with your appointment as been no update. Hope all went ok x 

Omg same here I have a 2 week appointment referral appointment next Friday. I did get my ca125 back and was normal but on getting a copy of my US scan and TV scan for something else, a solid component was spotted in my cyst one I knew I had, it’s not grown but as my sister has ovarian cancer at 48 I cannot help worrying. I was feeling positive when I got the blood result but now I am reading you can have a normal result and still have cancer so now back to thinking of nothing else doing my head in. Googling all the time, even though I shouldn’t 

i have to agree with previous comments whatever happens this cyst this cyst has to come out I can’t go through this ever again, actually considering ovaries coming out.

Omg same here I have a 2 week appointment referral appointment next Friday. I did get my ca125 back and was normal but on getting a copy of my US scan and TV scan for something else, a solid component was spotted in my cyst one I knew I had, it’s not grown but as my sister has ovarian cancer at 48 I cannot help worrying. I was feeling positive when I got the blood result but now I am reading you can have a normal result and still have cancer so now back to thinking of nothing else doing my head in. Googling all the time, even though I shouldn’t 

i have to agree with previous comments whatever happens this cyst this cyst has to come out I can’t go through this ever again, actually considering ovaries coming out.

I am nearly 2 months into my 2 week referral and haven't seen a specialist yet - only he can give me the results apparantly, so I know my CA is raised  but no idea how much, or what the MRi showed.

I am thinking Ovarian cancer too and terrified as post menopausal.  The odder Unidentified Objects that apeared on the ultrasound are the worry rather than the simple cysts and fibroids,  but google does tell me that a lot of odd solid masses can be benign too. So I'm hoping.  I guess they will have to remove them  to confirm, and perhaps I get the option of everything due to age?  No idea.  I am glad of google or I would have no information, at least it lets me work out what the options may be so I don't go blank when I finally see the consultant and I can make the most of my 20 mins or whatever you get.

I got my ca125 results by text so maybe there is hope. I do hope you get seen soon

mine is a simple cyst or was on my last scan 6 months ago so if this cancer it has grown fast, I don’t have any specific symptoms I went because of pain my right side my cyst is left, but because of my sister he did the TV scan as well, I suppose I should be grateful 

i am also post menopausal and that is a concern with cysts

I have never had an ultrasound before so I wonder if I probably had a  completely dfferent set of cysts 5 years  ago and I was oblivious.   The cysts were incidental findings and have sort of taken over now they have been found.  My  pains were always Left sided but stopped after menopause, the current/remaining cysts are on the right.   They said  5 - 6 cm so small, but they don't look small when I draw them all out, and wonder how on earth so many of us accommodate these and the associated worry! 

I am thinking with myself that  perhaps if it is something perhaps its a chance to catch it early, or earlier, than if I hadn't had an ultrasound.  Perhaps a chance to think about removal of things that may be a  problem in the future even - the less to go wrong the better?

It sounds really  promising that you have a good CA125 and a simple cyst, so I will keep my fingers crossed for you that all is OK XXX

Hi 1william1

Hope you are well and everything has been resolved now.

I am in a similar position and waiting for my 2 week appointment at the hospital following a scan that identified calcification of one of my ovaries. 

I am thinking no matter what happens I would like to get my ovaries removed as I've worried about this before because my mum had ovarian cancer. 

Have you had your ovaries removed? Was this a straightforward process? 

Thanks

hi

After 3 scans and alot of back and forth between hospitals and appointments, last just before christmas  I got a letter says they are refering me back to original hospital to go on the waiting list for surgery. The oncology clinic made it clear that if there was something to worry about on the scan i would have to have surgery with them. on the last scan they thought it was thickening of the cyst wall, but the case had to go to the MDT. i am assuming panic is over, but they never say that, i have heard nothing yet. When i discussed  BSO it was a simple day case proceedure though. I am guessing i am ont he 18week wait list.

I hopw everything goes ok with you the 2 week fast track is scary, just ask lots of questions I did.,  

Hi 1william1 

Thanks for your prompt reply - glad to hear things seem to be working themselves out.

I will ask about having my ovaries removed at the appointment.  I'm not sure what's going to happen yet. I just got a text, haven't had a letter yet so not sure what is going to happen. Just want to get it over with!

Thanks again 

i get it i was the same, thing is like you i ahd a family history so they have to do this, but once you are on the fast track there is no getting off, the oncologist told me that. It will be quick, i hate to say it but they have targets to meet and you have to have an appointment within 2 weeks. I did get alot of calls in the 2 weeks and my first apppointment was good.

I wish you luck i hope it all goes well, but like you i justed wanted my ovaries gone so i did not have the worry. 

Hi there - I had a BSO back in October.   I had to have it done abdominally which takes a bit longer to get over so 4-5 days in hospital is typical.  They say 6-8 weeks recovery after that and some people are OK quicker but I took a few weeks longer, I guess its all individual  They were thinking about keyhole which would been 2 or3 days I think where I was, although as above some may do it as day patient, and a quicker recovery time as you don't have the larger C-section/hysterectomy type cut to deal with,  and theres probably less 'messing' with your insides !!! :-)

Hi DaisyW

Thanks for your reply.  Glad to hear you are recovering well.  I was going to ask if I could have my ovaries removed after they have done the examination this week in the hope that I can avoid getting ovarian cancer in the future. 

Good to know the operation is fairly straightforward. :)

My biopsies were all benign in the end and I have been asked whether I think I went through it all unnecessarily, but there is a relief there that it's hard to explain to people who havent been under investigation for several months for ovarian cancer.    I wish I had been able to have keyhole but endometriosis found during surgery meant they couldn't.  I was going to have hysterectomy too, it turned into just the BSO to removes the tubes, cysts and ovaries.