Hello Chaz

lots of people lurking on here who have all used the help offered and it's our turn to assist. Feel free to contact me if you need support. I am 18 months post diagnosis. I had all surgery to avoid radiation as was lymph node negative but many of the issues overlap. 
 

hello everyone. Good to see we are still forging on. No news is perhaps good news with absence from this thread.

stay safe

jane x

Hi 

Thanks to the people who have replied, greatly appreciated trust me.

After not having the PEG fitted yesterday they are now going to NG tube fitted meaning up the nose, down the throat into the stomach.

It sounds horrific but has anybody else experienced this and can give me some help in dealing with it please?

Chaz

Hi Chaz. Nothing to fear from the NG tube I had one fitted 3 weeks into treatment then it was changed aftern21 days which then I used for a further 3 weeks. I put was my lifesaver all my medication went in via tube once swallow became difficult plus my hubby used to outbectra water in ti keep me hydrated. Mine had a pump thatbwas in a rucksac  I  could go out if I wanted ,a walk out even fed after treatment whilst hubby was driving. The fitting takes moments of discomfort and the removal is quick and painless.i have a blog www.radioactiveraz.wordpress.com where there’s pictures of me having it fitted.any questions just ask ,like I said treat it as a lifesaver.Plus yiu can still maintain swallow as long as yiu can ,Plus you can keep  trying food and hydration until yiu can’t do it anymore then revert to,peg. No operation requires.

Hazel

Hi John , I'm newly diagnosed x i

 hoping you're doing well ?? Well & truly finished with treatment ? 
 

kind regards 

Kate 

Hi Emma, may I ask how he's doing now love ? 
 

kind regards 

Kate 

Hi Kate. This is now an old post many in here are no longer active in the forum   I am Hazel aka RadioactiveRaz. I am still active in here if I can helpjust shout out. I am 3 years and 3 month post radiotherapy for tonsil cancer with several affected lymph nodes.i have a blog it may help you www.radioactiveraz.wordpress.com. 

Hazel 

Aww Hazel thanks so much ...I'll have a look ...that's so kind to reach out xx 

could you see the cancer on your tonsil ?? Funny question I know (nosy me ) xxxx 

Hi Kate. Nope I coujd see nothing. I had a lump in my neck which I had had fir a number of weeks we were in Spain I was the fittest I had ever been. A friend told me to see g l the rest us history. The cancer was hidden inside my tonsillar crypt and had slight spread to soft palate plus lymph node spread. I was h p v 16+ T2N2Nm was my diagnosis. Have you got your diagnosis yet. I am a firm believer in knowledge but please stay away from dr google you will scare yourself. 
Hazel don't be scared treatment is hard but better than alternative 

Hi Kate

Sorry to hear that you have fallen foul of this disease too. 

The treatment is a test of endurance yet often leads to excellent results and potential cure.  Hope all goes well.

Although this thread is old previous contributors may get email notifications of new posts. 

Check out this current active thread: 

www.cancerresearchuk.org/.../tonsil-cancer-whirlwind-week

Wishing you all the best  

Paul