Squamous Cell Carcinoma of the Tonsil.

Hi, Anybody else with this cancer? I was diagnosed 1/12/17 and treatment started 18/12/17. Entered a trial, 25x weekday daily radiotherapy plus 5x Chemotherapy. OK until start of week four, but had to start co codomel last night. Appetite has gone and forcing the fortysips down is a real problem, but have found thin porridge with honey to be good. Really find pureed meals inedible. I know it is only going to get worse over next four weeks. Any tips or thoughts. Thanks.

  • Hi Vatch, I  had my pet scan and got a copy of the report and it says I am cancer free! I haven't seen a Dr yet that will not be happening  for a few weeks as she is on holiday but the report is good! Thank you for everything your blog and advice made it...i want to say easier but that's wrong... Made it a lot less terrifying! Thank you again... Paula..xx

  • Fantastic news I am on myn3 rd radiotherapy session today have read all your post as well as Vatch blog it’s nice to hear that you have the all clear onward to upward for you 

     

     

  • Paula that’s great news, well done on getting through it

    take your time in recovery now you and your body have been through a lot

    keep us up to date

    i hope Lynne is progressing well too

    john if you are popping in now and then I hope all is good with you

    vatch

  • Paula

    hows things going ... well on the mend now I hope

    hows Lynne doing .. well too I hope

    john ... thinking of you ... I hope all is good with you

    vatch

  • HI there, I’m doing well thanks , got the all clear last week ! Such a huge relief. I’m eating nearly as normal as I was and feeling a lot better . Going back to work in two weeks time. Thank you for your support on here , brought me great comfort. And to anybody going through this just know there is hope at the end of it all. Xx

  • Hi Emma, my husband is going through the same, what stage was your Husbands if you don’t mind me asking, Mick’s is stage 4 , he’s had Radio Therapy before Christmas & now he’s had four out of six chemo’s Thanks Carol .

  • Hi Lynn

    huge congratulations bet you are chuffed. Great news I am starting week 4 tomorrow with my second chemotherapy ut have to see a consultant first mine in holiday until Tuesday have slight ringing in ears so may change cisplatin to carbo platin .

    i have huge blisters inside my right cheek and on right side if toungue never had a blister or ulcer before so spend most of daynrrtong tomsleep or trying g to eat. 

    Even water is burning unkess it just aired so in night when I want a drink I have to boil kettle cool it down drink go to bed drop off wantva drink too cool pain  relief inky paracetamol at min but tomorrow will beg for something else.

     

    anyway Been good reading your posts wiyhnPajla hope u get to meet up and celebrate 

    take care 

     

    hazel 

    www.radioactiveraz.wordpress.com have started a blog as well find it helps me and saves me talking all the time xx

     

  • I know your pain, the mouth ulcers are just horrible , I had them all down my tongue on either side and under my tongue and in the roof and back of throat. Tepid salt water  rinsing helped with them and diphlam mouth rinse. Paracetamol won’t do much for you so the doctor might offer you cocodamol. For a long time I could only drink room temp water as I was experiencing the same as you are . It does get easier but keep up with pain medication and don’t be afraid to ask them for stronger medication. 

  • Raz

    you will find normal water too abrasive now, it’s like trying to swallow lumps of chalk

    going into week 4 I had moved on to Chinese green tea, but I had boiled the water and then let it cool down

    it tastes disgusting but I had no taste at this point so it did nor matter

    chinese too though also has a bit of do good factor in it and I found it kept my mouth clean. And was kind to my ulcers

    try it what have you got to loose

    vatch

  • Hi Vatch

    thank you have been drinking de caff green tea for tears will look fir Chinese though. Yep room tem is the way forward just hard on a 90 min drive to Leeds was desperate when we got here. Sat in room having saline prior to chemotherapy after a sasted2 hours this motn8ng no one wanted to take the decision re change if chemotherapy to carbo platin so staying with cisplatin which us fine. But up since 0500 this morning looks like it will be 1930 before we leave today and back here for 0830 radiotherapy 

    It’s a long day but week 4 has started 

    hazel x