Hello

I also have been diagnosed with immature teratoma (right ovary).

I had it removed in july last year but tought it was a mature teratoma, only found out it was the immature kind after the biopsy results almost a month later. So around october I started the journey of understanding what had happened and what still needed to happen, but because it is so rare I found it very hard to find a doctor that gave me the sense of security that they actually knew what to do. In november I had an MRI and it showed that I probably had 2 secondary tumors (one behind my uterus and another next to my liver).

I started chemo in march of 2018 and had 3 cycles of BEP. I found treatment pretty rough. The first 2 weeks of every cycle were the hardest: nausea, sensitivity to smells, dangerously low blood pressure, bloating and gas, constipation or diarrea, overall discomfort. My hair fell after 2 weeks of the first cycle. Also had neuropathy and some dark nails which didn't bother me that much, but then last week some nails started getting loose, I think they're gonna fall :( . Had some calluses in my hands but they're gone now. And I have some dark marks in my skin as well.

After chemo was finished I had a new MRI but the results weren't positive for the tumor near the liver. So now I'll have another surgery (in 4 days) to remove those and have a full histerectomy. After the biopsy results from this surgery will see if more chemo will be needed.

Sorry for the long post, I made it as short as I could (and still left some details out haha).

As you girls said, a good support system is great. For me it's friends and family <3. Still I missed talking to people that actually know what it is to go trough this, thank god I finally found you (would love to be added to the FB group if that's okay).

How are you girls now? Are you all done with chemo and everything?

Hi Gabbi,

There is a closed FB page where you can join and share experiences with people who are like you - going through it, as well as those who have gone through it. Just search for Germ Cell Ovarian Cancer Support Group. I have tried to PM you the details but it wouldn't work! 

I'd recommend it as you don't feel like you are on your own xxx

Hi Gabbi,

There is a closed FB page where you can join and share experiences with people who are like you - going through it, as well as those who have gone through it. Just search for Germ Cell Ovarian Cancer Support Group. I have tried to PM you the details but it wouldn't work! 

I'd recommend it as you don't feel like you are on your own xxx