Hello - immature teratoma (germ cell tumour)

Hi,

I was diagnosed with a germ cell tumour. Had 3 cycles of BEP, one of EP. This was followed by tumour removal, a full hysterectomy and removal of both ovaries. 

I have two young children, a great husband & mother who supported me.

Am happy to share experiences or just chat!

Parents
  • Hi RP

     

    I too was diagnosed with an immature teratoma on my ovary .. 3 days before Christmas last year. 

    I am just about finished my third third cycle of BEP (I have my last bleo in 3 days!) after having my tumour and right ovary removed. 

    How did you find the chemo treatment? 

    Ive really struggled the last 2 months with my diagnosis and treatment .. thank heavens for family. 

Reply
  • Hi RP

     

    I too was diagnosed with an immature teratoma on my ovary .. 3 days before Christmas last year. 

    I am just about finished my third third cycle of BEP (I have my last bleo in 3 days!) after having my tumour and right ovary removed. 

    How did you find the chemo treatment? 

    Ive really struggled the last 2 months with my diagnosis and treatment .. thank heavens for family. 

Children
  • Last bleo - woohoo! I'm sorry to hear of your diagnosis. Its a hard chemo regime, according to my nurse anyway. I struggled a little to deal with what was happening. Side effects wise I didn't do too badly. Hair loss, fatigue, nausea and loss of appetite, with some neuropathy - these were the main side effects I suffered. How about you? Sounds like you have a good support network. Stay positive x
  • Yea my nurses and oncologist said it was a hard regime too. I had nothing to compare it too but tended to agree! Chatting to people in the clinic on treatment days they were always surprised when I'd say to the nurses "see you tomorrow"  and then for days after that. I found I was always the youngest person there, by a good few decades  I found that a bit upsetting some days  

    I've had the same side effects mostly. Couldn't believe how early my hair started coming out, in such huge amounts. I got it clippered short day 18 of cycle 1 because it was just so so thin. My nausea hangs around the whole cycle but does lessen a bit towards the end so I spend a few days eating as much good food as I can just to get some calories in. How have you found the neuropathy? Has it eased since? I have some skin toxicity (like callouses on the palms of my hands) that are a bit painful at times but thankfully don't cause any real issues. 

    Did you have a picc line put in for treatment? 

    How long ago were you going through this? 

    Im from Australia btw :) 

  • I had chemo between may - July last year. I had surgery in August. Do you need to have sugery?

    I had the choice of a PICC or port, but I went for the PICC. I was so glad to have it out when treatment was over :) 

    I found the neuropathy bad mid cycle. I couldn't do my childrens shirt buttons :( not very good in getting them ready in the mornings! My knuckles and elbows went black fro the bleo. Also I have strange stripes on my skin!

    I suffered from a lot of bladder issues. I was an in patient for days 1-5 as my fluid was measured in & out. 

    Now I don't suffer too much. I think I have raynaud syndrome linked to neuropathy (not brilliant over Winter!) and have my appetite back. My heart rate is fairly high though.

    I have tried to add you as a friend here. If you are on FB I will PM you my details. There s a closed group of fellow patients who can share experiences. We can get you added there if you want? 

    Whereabouts are you in Oz? 

  • I've just sent you a pm :)