Recovering from radical hysterectomy.

I’m recovering from radical hysterectomy and lymph node removal and would like to talk to any others who have been through the same. I do find I’m having sharpe pains and need reassurance. Please, anyone else who has come through it or in the same position, would love to connect. X

  • Hi Liz, sorry to read your post. I had endometrial cancer a year ago. My hot flushes started exactly a week after the op and continue. It is a shocking situation for you and your family. How are you feeling now!

  • So sorry to hear your feeling tender and in some pain. I came home after 4 days which surprised me as I was opened up from above my belly button down to my pubic line. I had a difficult pregnancy with my baby getting stuck, unfortunately the nurse just pulled him out causing two Massive tears in my womb. This made telescopic hysterectomy impossible. It took my a few weeks to recover and was unable to do much for 6 weeks. You will get there, just take your time and let your loved ones do as much as possible for you. The hot flushes are part of the menopause, there is a Facebook page where you can for tips and advice, no one tells you about the menopause when growing up!! Which part of the country do you live in? Speak to your specialist nurse if you need to talk, they are very good and seem to empathise with what we go through. Stay strong, stay positive, your still at the very early stages of getting better, it’s a long haul, just remind yourself you are still here the consultant will be seeing you every three months to check on you. Sending you lots of love and hugs.
  • I AM exactly the same had malignant melanoma in my womb which is exceedingly rare had a radical hysterectomy and 19 lymph nodes removed still have pain now, had op April 2016. Can't sleep cause of flushes and generally feeling bleurgh... hope you feel better soon. Michelle

     

  • Hi Angie sorry to bother you I had a radical hysterectomy with ovaries.felloypian Tubes and cervix removed 12 days ago after being diagnosed with stage 1b1 tumor removed by lezis, just waiting results from rival of lymnodes.  I have got pins  and needles in left leg and soreness around vagina,  did you have this feels like I have been nettled feels weired.  Other than than feel great menapause hasn't got me yet x

  • Hi Kobybear. 

    I had a radical hysterectomy about 2.5 months ago now stage 1b1.  I had some aches and pains in my legs too after lymph nodes removed. I had keyhole and recovered very quickly. My vagina was swollen at 1st and a bit numb on left side which still is now. My doc reckons I will miss menapause and so far I’m fine. I  don’t have to have any further treatment and I feel good and back working. If you have any concerns I’m sure the hospital will be happy to advise you.

    Hoping you have clear results as well and you make a full recovery. Anything you want to talk about feel free to contact me.

    Gaynor xx

  • Hi liz. I hope you are feeling well now. Sorry to message on an old ish thread. Can I ask how you were diagnosed with endo cancer ?

    thanks xx

  • Hi reading your response. Did u have clear margins after the lletz removal? I've just been diagnosed 1b1 and they removed a 1cm tumour but not clear margins so have to have radical hysterectony including ovaries,lymph nodes and 2cm of vaginal wall. Have got mri and ct scans next week which fingers crossed is all clear. Wondered how the op went,only time ive been to theatre was for lletz. Nervous but more so about the scans. 

  •  

    Hi Sharon,

    As someone who has had 2 bouts of breast cancer in the last 9 years, I just want to assure you that there is nothing to worry about with your scans. You lie on a table and go back and forth through a tunnel type machine for the MRI. There are different sized machines. If you are large and get a small machine, it can be a bit claustrephobic. There is also a lot of clunking as the machine takes pictures of different areas. There is no problem with a larger machine. They can play music for you if you find the noise too much. The CT is a lot less claustrephobic, although it can also be a bit clunky at times,  but they can both play an important part in diagnosis.

    Have you got a date for your scans or your hysterectomy yet? I hope that all goes well for you. You are just as well to go in again if you haven't got clear margins. I did not have clear margins after my lumpectomy, although my surgeon assured me that he had noticed this and had taken another slither. I was told that I had mucosal cancer, which is not a very aggressive form, but it grew back in the same breast within a year. Second time around I had a double mastectomy, done by a different surgeon and, I've never looked back.

    We are always here for you.

    Kind regards,

    Jolamine xx

  •  

    Hi Kate,

    A very warm welcome to our forum.

    I have just replied because I note that nobody has answered your question yet. I am afraid that I am a breast cancer lady and don't know anything about endo cancer. Do you have this?

    You may find that, with this being an oldish thread, the people who wrote the posts above, may not come on to the site all that often.

    Can I suggest that you go to the blue banner at the top of this page? Insert endo cancer in the search box and click. This will bring up previous posts on this topic and you may find it easier to get a reply from some of these other posters.

    Kind regards,

    Jolamine xx

  • Hi Angie

    sorry to hear about your radical hysterectomy. It seems we might have had ours at the sane time. Mine was in the 2ndJan. Did you have everything removed (uterus, Fallopian tubes, ovaries cervix and nodes? 
    when you say sharp pains where are these? I would definitely recommend that you let your medical team know if you are getting sharp pains post surgery. I am not in any pain but occasionally feel pressure on the abdomen and usually a couple of paracetamol does the trick.

    I wish you well and hope that your everything from here is positive.