Is the waiting the hardest?

I was diagnosed with esophageal cancer last Monday. My world has fallen apart after the initial "we spotted something we don't like" chat after my first endoscopy.

I have a 23 week old baby, a 5 year old and a 7 year old and our lives might not be perfect but I do not want to die. I am trying to stay positive but it is so hard.

Next week I have an ultrasound endoscopy and then consultant. Every wait seems to be two weeks long! I need help on how to cope with all the waiting...

  • Hi leeky

    The waiting is hard, 

    wishing you the very best for your plan of treatment , just try to stay possitive and fingers crossed things will get better soon

    cheers Ed

  • Hi Leeky,

    Welcome to the forum.

    The waiting is about the hardest part of the cancer journey, the frustration at how long everything seems to take really gets you down. . Like you my oseophageal cancer was first picked up during an endoscopy (my GP and I both thought I had a peptic ulcer as my symptoms matched that and I hadn’t lost any weight. 

    I didn’t feel I was getting anywhere until I had the results of a CT scan when my staging was done and the location and size of my primary confirmed. I discussed this with the oncologist and agreed a treatment plan (my own options were limited). Once that was out of the way I started chemo the following week. 

    I hope you don’t have too long a wait. Meanwhile do what you can to distract your mind from thoughts of cancer - keep busy and try not to think too far ahead. 

    Good luck

    Dave

  • Thank you both. I want to hide away. But asking on here jas helped 

  • I am so sorry you having to deal with this. The worst 14 days of my life were between the 'yes you have probably got it' and ' yes you have'. I did not believe what friends told me when they said that once there were treatments in place that it did get better, but it does. Cancer seems to me to be all about waiting. Waiting, waiting. For the next test, next result. You adapt. You just do. I wish you all the best in your treatment.
  • Hi I can relate to how you are feeling as i also am waiting. It's very hard and it feels like it's all I can think about. I was very positive but wish I had more support. I hope they get you sorted soon .

  • Thank you. The waiting seems so cruel. It's not like if you had tonsilitis they would send you home without antibiotics. I know this is much bigger and there is a resource issue. But the waiting is just the worst

  • I hope you get the support and help you need

  • Hi leeky hope your doing good,as Dave has said you need to keep busy , I found walking helped as we have a great old canal nearby and thier is nothing better seeing the smile on my kids faces when thier feeding the ducks or running from the swans lol just keep doing what you normally do things will improve,, tonight for me has been putting the Christmas lights outside and if nothing the tangles in the lighting have definitely kept me busy , who tangles them up in the box whilst they are packed away in the loft???

     

    cheers ed 

  • Can I hide away with you. This is my second scan coming up. Looking at potential secondary lung cancer. Prior to that I had major depesation(which I still have) so distraction is not easy This is like living a nightmare.