This discussion has been locked.
You can no longer post new replies to this discussion. If you have a question you can start a new discussion

Traumatic aborted colonoscopy - now long wait for CT scan.

Hi there

I was sent for an urgent colonoscopy as my GP was worried I might have bowel cancer. I took my moviprep Monday and Tuesday morning and then went to Hospital. I was not given an appointment time, only an arrival time. I was taken to a small room at 2.20pm and fitted with a canula, which was quite painful. I was then left in that room by myself until 4.00pm. I was getting increasingly anxious from the waiting and I wasn't allowed to go to reception to see my partner, and he wasnt allowed in to see me. At 4.00pm a nurse came to tell me I was next, and I was taken to the exam room at 4.30pm. Since I was very anxious I asked for the maximum sedation and they gave me 5mg mizadolam and 100ug of Fentanyl. I felt a very slight drunk sensation, and then it passed. I was completely lucid, and recall the whole horrific ordeal. The pain was indescribable. I was sobbing and pleading for more painkillers. They decided to stop, which made me even more upset because I didnt want them to abandon the procedure, just give me a GA or more painkillers! The doctor said he saw the left side of my colon and that it was totally normal. I was allowed to leave after 10 minutes, and at no point did I feel woozy, sleepy or any effects that I had been told to expect from the sedation. They have now told me I need to wait 3 weeks to hear back about arranging a CT scan to view the side of my colon they couldn't reach. Obviously, I am really upset and quite angry - a) because the painkillers didn't work b) because the procedure wasn't completed and c) because I now have an anxious wait for the CT scan, if I even get it.

Has anyone else had this experience? Everyone I have spoken to said they didnt feel any pain, only discomfort. I'm now terrified of ever having the procedure again. Why didn't the painkillers have any effect on me? Can I ask for it again under general anaesthetic? What happens if they refuse the CT scan or I have to wait months for an appointment? Should I make a complaint to the hospital? I'm really unsure what to do.

  • Went for colonoscopy yesterday. Horrendous day taking Movieprep. 7 hours on toilet even though clear quickly. Had sedation which seemed to have no effect. Very painful and procedure was aborted due to adhesions from previous surgery meaning they could not get round first corner. Now to wait 6 weeks for CT scan. Late last night had awful diarrhoea. Is this normal? I wondered if there was something blocked colon meaning it wasn’t really cleaned out? Repeat said good prep but they only saw the first bit. Very worried now.

  • I had a colonoscopy  or should say attempted one 2 days ago was given same drugs as you with no effect ,they just managed to go into the sigmoid and stopped because of the pain did see severe diverticula l seem so mad that l suffered the 2 days pre prep and then 20 mins of torture only to be referred back to consultant l was on the 2 week pathway due to  cancer symptoms so don’t know what’s going to happen now but l know one thing never having with procedure done without ga. 

  • Me too - my first one was over 30 years ago with a tube that was as wide as a garden hose! A few weeks later I had a gastric endoscopy with the same piece of kit.

    For any new patients reading - the vast majority of patients experience only mild discomfort but the minority who do have issues seem to have it bad.

    Either way, this is a far better option for diagnostic biopsies and visual checks than the only option available to previous generations which was exploratory surgery. In the late 1970s my Grandad had that and he never really recovered from the “let’s cut you open and take a look inside your bowels” diagnostic approach. 

     

  • I was in hospital last year with badly infected colon colitis pain was excruciating but no colonoscopy just ct scan then just left for over a year with no follow up until i went to gp who booked a consultant to see me so I had a colonoscopy 3 days ago its my 3rd 1 in 15 years first 2 was painless this 1 was killing me i screamed in pain so they abandoned it the pain relief is pathetic if your in so much pain why don't they knock you out morphine or something oh well they now have to give me ct scan which will cost nhs more money its ridiculous really because if they find something on ct then you have to have another torterous colonoscopy why don't they do the job right in the 1st place this was all written down on my paperwork that consultant will see , so i wait for ct now still wondering if that was water instead of pain killer .

    NHS cutting corners with pain relief how disgusting for patients !

  • I've had the internal colonoscopy and ct colonoscopy.  Like many others the internal colonoscopy was abandoned because I was in too much pain apparently.  I don't actually remember any of it as I'd had sedation.  I wish they would further investigate why we found it so painful.  Next I had the ct colonoscopy with huge amounts of gas pumped into me that I thought it would blow out of my mouth!  I was in agony for two days with this, couldn't eat or drink and my entire abdomen remained swollen.

    The only difference between the two procedures is the way I was positioned.  With ct I was on my back but with internal on my left side.  I can't understand the logic of laying you on the side that the colon start on as all the right hand body weight will crush down making more gas needed and maybe causing the pain?  The ct was slightly uncomfortable but nothing major and I was laying on my back which I feel may be the difference.  It was after the ct that I found the worst and extremely painful it really took my breath away.

    Unfortunately I am booked in to have another internal colonoscopy on Thursday so will ask why I have to be on my left side for it.  It doesn't seem to matter how much sedation I get as can't remember being in pain last time, yet the abandoned it.  Oh well, wish me luck!

  • I've just had colonoscopy had all the pain relieve offered even gas and air was in excruciating pain was in for about an 1 hour 30 mins for it to be aborted i had 1 done Sunday fasted all day Saturday to be told moviprep hadn't work so went home with some more so starved then second day went again to be abandoned will never have another in my life time unless I'm fully sedated but not sure if they can so waiting for a scan why couldn't i ave a scan in 1st place 

  • I have just been to see GP I have a history of IBS, my spinchter muscles are damaged due to a complicated childbirth 38 years ago. I am nearly seventy and have started to loose weight. I had a colonoscopy about eighteen years ago the experience was absolutely horrendous, I swore I would never go through anything like that again. My GP has put me on a two week urgent list at my local hospital where she said they will probably want to do a colonoscopy, I have told her that I will definitely not have the procedure she said they may give me a general aesthetic but I doubt that very much. I will keep you informed. 

  • I have the greatest of sympathy for all the posters who have had a bad experience with their colonoscopy. Just for a bit of balance for anyone who might be put off the procedure for fear of the pain, I’d like to report on my own experience. I didn’t find the laxatives (3 senna tablets then 2 doses of Picolax) unpleasant to take - the Picolax was just like lemon squash (the stuff you dilute with water). The effects of the laxative were as expected - but no worse than the severe diarrhoea I’ve had before on holiday in SE Asia when the food didn’t agree. They do have to get the bowel completely empty after all. The staff at the the unit were very professional and  friendly. I had the Fentanyl and Midazolam which I guess worked fine - though I didn’t feel at all woozy there was really no significant discomfort at all nor bloating. Fortunately for me they didn’t find anything abnormal so the cause of my intermittent lower abdominal pain remains a mystery for the moment.

    I was offered tea and biscuits while I was in recovery which was very welcome after my 24 hour fast.

    Again may I say that I do not want to make light of the horrible time some folks endure, but just to record my personal story.

  • Well I cleared out my bowels and attended the colonoscopy but within minutes and despite the drugs and gas and air the endoscopist couldn't get beyond the sigmoid.  She described it as feeling "fixed".   Back to the drawing board!

  • Had my second colonoscopy last week and it was just as bad as the first one (had bowel cancer 18 months ago and this procedure is part of the follow-up surveillance).  I know how important this procedure is but I just know I cannot go through with this again without being "knocked out".  First one painful but the second one was excrutiating.  I think I will accept the sedation next time but after reading all of the above posts I don't have much faith that it will work.  On the plus side, bowel prep was a doddle!