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Traumatic aborted colonoscopy - now long wait for CT scan.

Hi there

I was sent for an urgent colonoscopy as my GP was worried I might have bowel cancer. I took my moviprep Monday and Tuesday morning and then went to Hospital. I was not given an appointment time, only an arrival time. I was taken to a small room at 2.20pm and fitted with a canula, which was quite painful. I was then left in that room by myself until 4.00pm. I was getting increasingly anxious from the waiting and I wasn't allowed to go to reception to see my partner, and he wasnt allowed in to see me. At 4.00pm a nurse came to tell me I was next, and I was taken to the exam room at 4.30pm. Since I was very anxious I asked for the maximum sedation and they gave me 5mg mizadolam and 100ug of Fentanyl. I felt a very slight drunk sensation, and then it passed. I was completely lucid, and recall the whole horrific ordeal. The pain was indescribable. I was sobbing and pleading for more painkillers. They decided to stop, which made me even more upset because I didnt want them to abandon the procedure, just give me a GA or more painkillers! The doctor said he saw the left side of my colon and that it was totally normal. I was allowed to leave after 10 minutes, and at no point did I feel woozy, sleepy or any effects that I had been told to expect from the sedation. They have now told me I need to wait 3 weeks to hear back about arranging a CT scan to view the side of my colon they couldn't reach. Obviously, I am really upset and quite angry - a) because the painkillers didn't work b) because the procedure wasn't completed and c) because I now have an anxious wait for the CT scan, if I even get it.

Has anyone else had this experience? Everyone I have spoken to said they didnt feel any pain, only discomfort. I'm now terrified of ever having the procedure again. Why didn't the painkillers have any effect on me? Can I ask for it again under general anaesthetic? What happens if they refuse the CT scan or I have to wait months for an appointment? Should I make a complaint to the hospital? I'm really unsure what to do.

Parents
  • I was in hospital last year with badly infected colon colitis pain was excruciating but no colonoscopy just ct scan then just left for over a year with no follow up until i went to gp who booked a consultant to see me so I had a colonoscopy 3 days ago its my 3rd 1 in 15 years first 2 was painless this 1 was killing me i screamed in pain so they abandoned it the pain relief is pathetic if your in so much pain why don't they knock you out morphine or something oh well they now have to give me ct scan which will cost nhs more money its ridiculous really because if they find something on ct then you have to have another torterous colonoscopy why don't they do the job right in the 1st place this was all written down on my paperwork that consultant will see , so i wait for ct now still wondering if that was water instead of pain killer .

    NHS cutting corners with pain relief how disgusting for patients !

  • I've had the internal colonoscopy and ct colonoscopy.  Like many others the internal colonoscopy was abandoned because I was in too much pain apparently.  I don't actually remember any of it as I'd had sedation.  I wish they would further investigate why we found it so painful.  Next I had the ct colonoscopy with huge amounts of gas pumped into me that I thought it would blow out of my mouth!  I was in agony for two days with this, couldn't eat or drink and my entire abdomen remained swollen.

    The only difference between the two procedures is the way I was positioned.  With ct I was on my back but with internal on my left side.  I can't understand the logic of laying you on the side that the colon start on as all the right hand body weight will crush down making more gas needed and maybe causing the pain?  The ct was slightly uncomfortable but nothing major and I was laying on my back which I feel may be the difference.  It was after the ct that I found the worst and extremely painful it really took my breath away.

    Unfortunately I am booked in to have another internal colonoscopy on Thursday so will ask why I have to be on my left side for it.  It doesn't seem to matter how much sedation I get as can't remember being in pain last time, yet the abandoned it.  Oh well, wish me luck!

Reply
  • I've had the internal colonoscopy and ct colonoscopy.  Like many others the internal colonoscopy was abandoned because I was in too much pain apparently.  I don't actually remember any of it as I'd had sedation.  I wish they would further investigate why we found it so painful.  Next I had the ct colonoscopy with huge amounts of gas pumped into me that I thought it would blow out of my mouth!  I was in agony for two days with this, couldn't eat or drink and my entire abdomen remained swollen.

    The only difference between the two procedures is the way I was positioned.  With ct I was on my back but with internal on my left side.  I can't understand the logic of laying you on the side that the colon start on as all the right hand body weight will crush down making more gas needed and maybe causing the pain?  The ct was slightly uncomfortable but nothing major and I was laying on my back which I feel may be the difference.  It was after the ct that I found the worst and extremely painful it really took my breath away.

    Unfortunately I am booked in to have another internal colonoscopy on Thursday so will ask why I have to be on my left side for it.  It doesn't seem to matter how much sedation I get as can't remember being in pain last time, yet the abandoned it.  Oh well, wish me luck!

Children
  • Well I cleared out my bowels and attended the colonoscopy but within minutes and despite the drugs and gas and air the endoscopist couldn't get beyond the sigmoid.  She described it as feeling "fixed".   Back to the drawing board!

  • Had my second colonoscopy last week and it was just as bad as the first one (had bowel cancer 18 months ago and this procedure is part of the follow-up surveillance).  I know how important this procedure is but I just know I cannot go through with this again without being "knocked out".  First one painful but the second one was excrutiating.  I think I will accept the sedation next time but after reading all of the above posts I don't have much faith that it will work.  On the plus side, bowel prep was a doddle!