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Traumatic aborted colonoscopy - now long wait for CT scan.

Hi there

I was sent for an urgent colonoscopy as my GP was worried I might have bowel cancer. I took my moviprep Monday and Tuesday morning and then went to Hospital. I was not given an appointment time, only an arrival time. I was taken to a small room at 2.20pm and fitted with a canula, which was quite painful. I was then left in that room by myself until 4.00pm. I was getting increasingly anxious from the waiting and I wasn't allowed to go to reception to see my partner, and he wasnt allowed in to see me. At 4.00pm a nurse came to tell me I was next, and I was taken to the exam room at 4.30pm. Since I was very anxious I asked for the maximum sedation and they gave me 5mg mizadolam and 100ug of Fentanyl. I felt a very slight drunk sensation, and then it passed. I was completely lucid, and recall the whole horrific ordeal. The pain was indescribable. I was sobbing and pleading for more painkillers. They decided to stop, which made me even more upset because I didnt want them to abandon the procedure, just give me a GA or more painkillers! The doctor said he saw the left side of my colon and that it was totally normal. I was allowed to leave after 10 minutes, and at no point did I feel woozy, sleepy or any effects that I had been told to expect from the sedation. They have now told me I need to wait 3 weeks to hear back about arranging a CT scan to view the side of my colon they couldn't reach. Obviously, I am really upset and quite angry - a) because the painkillers didn't work b) because the procedure wasn't completed and c) because I now have an anxious wait for the CT scan, if I even get it.

Has anyone else had this experience? Everyone I have spoken to said they didnt feel any pain, only discomfort. I'm now terrified of ever having the procedure again. Why didn't the painkillers have any effect on me? Can I ask for it again under general anaesthetic? What happens if they refuse the CT scan or I have to wait months for an appointment? Should I make a complaint to the hospital? I'm really unsure what to do.

Parents
  • Hi,

    So sorry to hear about your second horrible experience. Most people don't have anything like that level of pain, my guess is that the diverticulitis has caused you to become sensitive and that added to your anxiety and twitchiness has created the extreme pain you experienced. I've had several colonoscopies over the past thirty years and the only time it was ever anything other than mildly unpleasant was when I had ulcers in my colon and the probe touched one of them. The pain then was extreme, so I can empathise with your experience.

    The CT scan is a piece of cake in comparison - completely non-invasive with just a canula in your hand through which a dye is passed (assuming you have a CT with contrast). 

    Good luck!

    Dave

     

Reply
  • Hi,

    So sorry to hear about your second horrible experience. Most people don't have anything like that level of pain, my guess is that the diverticulitis has caused you to become sensitive and that added to your anxiety and twitchiness has created the extreme pain you experienced. I've had several colonoscopies over the past thirty years and the only time it was ever anything other than mildly unpleasant was when I had ulcers in my colon and the probe touched one of them. The pain then was extreme, so I can empathise with your experience.

    The CT scan is a piece of cake in comparison - completely non-invasive with just a canula in your hand through which a dye is passed (assuming you have a CT with contrast). 

    Good luck!

    Dave

     

Children
  • I thought it was me that wasn’t normal as I had one today and my husband said they don’t hurt but jeez it was excruciating.. it was like that shooting pain that occasionally shoots up your butt but was prolonged! I only had gas and air after two failed attempts of a candular, it did zero and I’m convinced it was only air as was nothing like the labour one that tastes odd and trips you out.. I literally couldn’t breathe or move at times and they were saying suck in the air but the pain was paralysing. I thought it would never end, I moved on to each side and on my back and a nurse was pressing on my stomach to try make it less painful.. the upside of the traumatic experience is it was all clear 

  • I had my first colonoscopy yesterday and hasn’t the sedative . it was so painful I cried and they gave me gas and air and a nurse pressed so hard down on my stomach I thought i would die ...they said they gave me more sedative but I’m not sure they did .they took 10 biopsies and said there were no polyps present .got to wait up to 6 weeks for the results

  • Oh, that's awful. I hope you recover from the trauma soon.

    Good luck with the result of the biopsies.

    Dave