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Traumatic aborted colonoscopy - now long wait for CT scan.

Hi there

I was sent for an urgent colonoscopy as my GP was worried I might have bowel cancer. I took my moviprep Monday and Tuesday morning and then went to Hospital. I was not given an appointment time, only an arrival time. I was taken to a small room at 2.20pm and fitted with a canula, which was quite painful. I was then left in that room by myself until 4.00pm. I was getting increasingly anxious from the waiting and I wasn't allowed to go to reception to see my partner, and he wasnt allowed in to see me. At 4.00pm a nurse came to tell me I was next, and I was taken to the exam room at 4.30pm. Since I was very anxious I asked for the maximum sedation and they gave me 5mg mizadolam and 100ug of Fentanyl. I felt a very slight drunk sensation, and then it passed. I was completely lucid, and recall the whole horrific ordeal. The pain was indescribable. I was sobbing and pleading for more painkillers. They decided to stop, which made me even more upset because I didnt want them to abandon the procedure, just give me a GA or more painkillers! The doctor said he saw the left side of my colon and that it was totally normal. I was allowed to leave after 10 minutes, and at no point did I feel woozy, sleepy or any effects that I had been told to expect from the sedation. They have now told me I need to wait 3 weeks to hear back about arranging a CT scan to view the side of my colon they couldn't reach. Obviously, I am really upset and quite angry - a) because the painkillers didn't work b) because the procedure wasn't completed and c) because I now have an anxious wait for the CT scan, if I even get it.

Has anyone else had this experience? Everyone I have spoken to said they didnt feel any pain, only discomfort. I'm now terrified of ever having the procedure again. Why didn't the painkillers have any effect on me? Can I ask for it again under general anaesthetic? What happens if they refuse the CT scan or I have to wait months for an appointment? Should I make a complaint to the hospital? I'm really unsure what to do.

Parents
  • I was due to have a colonoscopy yesterday. (Weds). Tuesday evening I took the Movei-Prep as per instructions (disgusting). The instructions claimed going to the loo should stop about 11.0pm. Obviously I couldn't wait but it didn't stop & didn't until lunchtime on Wednesday. I cannot begin to say how ill I felt - I was in & out of bed all night & barely slept.It finally stopped about 12.30 lunchtime by which point I was absolutely beside myself. I live alone & I was so hungry but barely able to make myself something to eat.

    I rang the hospital at 8.00 am (appt was at 10.00am) & told them what had happened. I was told "oh that does happen sometimes". No-one had even mentioned that possibility so I was totally unprepared. Procedure, obviously, was cancelled. I was also told there is a better product new to the market which doesn't have that effect. Why do we not get that?

    I spent yesterday feeling absolutely dreadful & have absolutely nothing to show for it & now I have no idea what to do. There is NO WAY I am going through that again or even risking going through it. I weigh 6.5 stone & had unexplained weight loss - part of the reason for the colonoscopy. I must have lost even more weight + feeling dreadful

    I HATE being negative about the NHS because I believe in it & believe that overwhelmingly it does a fantastic job BUT if you are given Movie-Prep just be aware this is a possible side effect.

     

Reply
  • I was due to have a colonoscopy yesterday. (Weds). Tuesday evening I took the Movei-Prep as per instructions (disgusting). The instructions claimed going to the loo should stop about 11.0pm. Obviously I couldn't wait but it didn't stop & didn't until lunchtime on Wednesday. I cannot begin to say how ill I felt - I was in & out of bed all night & barely slept.It finally stopped about 12.30 lunchtime by which point I was absolutely beside myself. I live alone & I was so hungry but barely able to make myself something to eat.

    I rang the hospital at 8.00 am (appt was at 10.00am) & told them what had happened. I was told "oh that does happen sometimes". No-one had even mentioned that possibility so I was totally unprepared. Procedure, obviously, was cancelled. I was also told there is a better product new to the market which doesn't have that effect. Why do we not get that?

    I spent yesterday feeling absolutely dreadful & have absolutely nothing to show for it & now I have no idea what to do. There is NO WAY I am going through that again or even risking going through it. I weigh 6.5 stone & had unexplained weight loss - part of the reason for the colonoscopy. I must have lost even more weight + feeling dreadful

    I HATE being negative about the NHS because I believe in it & believe that overwhelmingly it does a fantastic job BUT if you are given Movie-Prep just be aware this is a possible side effect.

     

Children
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