I was just diagnosed yesterday and I am feeling devastated.. I am just 28 years old and a single mom.. Anyone here has first hand experience? I badly need help..
I was diagnosed with low grade Endometrial Stromal Sarcoma in November 2002. I ended up with a stoma bag for a year, when it was then reversed.
I was 44 years old at the time, I'm now 67 and going strong.
I was treated with 4 Megestrol tablets daily for 20 years. No chemo or radiotherapy, as I was told it would not respond to such treatment. I had annual checks with my Oncologist who told me 2 years ago that he didn't feel it necessary to continue with the tablets or checks. So far all is great and hopefully that will continue.
I had had a total hysterectomy 2 years previously to it being found, but unfortunately the cancer makeup had leaked into my pelvic region and grew, attaching itself to my bowel. Having ESS was rare at the time, but growing after a hysterectomy was even rarer.
I hope this helps a little. I know it won't stop you from worrying, but just shows there can be light at the end of the tunnel.
I was diagnosed with low grade Endometrial Stromal Sarcoma in November 2002. I ended up with a stoma bag for a year, when it was then reversed.
I was 44 years old at the time, I'm now 67 and going strong.
I was treated with 4 Megestrol tablets daily for 20 years. No chemo or radiotherapy, as I was told it would not respond to such treatment. I had annual checks with my Oncologist who told me 2 years ago that he didn't feel it necessary to continue with the tablets or checks. So far all is great and hopefully that will continue.
I had had a total hysterectomy 2 years previously to it being found, but unfortunately the cancer makeup had leaked into my pelvic region and grew, attaching itself to my bowel. Having ESS was rare at the time, but growing after a hysterectomy was even rarer.
I hope this helps a little. I know it won't stop you from worrying, but just shows there can be light at the end of the tunnel.
