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Kate7121
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Hello , 

im kate and I'm new to the forum 

I decided to join after seeing it on Facebook in the early hours as I'm currently not sleeping .

a little bit about me ... I was diagnosed with her2+ breast cancer on Christmas Eve 2015 , I underwent chemo then had my left breast removed then radiotherapy , and as I'm her2+ I continued with herceptin for the year up to Feb this year 

everything and every body in my team was so positive , that this was treatable curable and yes it was a long course of treatment a year out my life but was reassured I'd be ok .... so that's what I went home and told my children , mummy has a lump mummy is having special medicine that will shrink that lump and it will make mummy feel really sick and her hair will fall out but then it will get rid of the cancer and mummy's Drs think it will go away . I know they can't actually say 100 percent but the positivity with that primary diagnoses stuck with me and that's what makes this next bit hard . 

Feb 2017 three days after finishing herceptin I get awful pain in top right hand stomach , end up in a and e where they scan me for appendicitis gall stones and or possibly a perforated bowel . What they discovered was multiple liver mets and I'm now stage four incurable at 46 years old 

I had kadcyla for six rounds .... after four rounds I became incredibly sick again and scan showed further spread 

liver enzymes up so put on steroids to get me well enough to eat and feel better and find me a new chemo regime 

currently on my second cycle of cape , havevreduced the steroids to a manageable 1mg a day but my main issue is still sleep ! I've slept 2 hrs max a night in six weeks 

 

 so that's me 

 

I have 4 children aged from 21 down to 7 and I remain as positive as I can that I'll be hereby as long as I can 

lookingbfirward to chattingbin here in the night with anyone else that can't sleep  

 

mych live 

kate 

 

 

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    Hi Kate,

    Welcome to Cancer Chat, the site that nobody really wants to join. I am so sorry to hear about the mets after you have been through so much to fight this.This cannot be easy for you when you still have young children and were led to believe that it could be cured.

    .I lost my Mum to metastases from breast cancer twenty years ago. I myself was diagnosed with breast cancer 7 years ago and with a second bout of primary cancer in the same breast  the following year. I had a lumpectomy the first time followed by Tamoxifen and a double mastectomy the next time followed by Letrozole. I have just come off Letrozole this year and am now waiting for a bone scan, as I have been having a lot of back and tummy pain accompanied by chronic constipation. I will see the oncologist to discuss things after that. So, once again, I am in fear of a secondary diagnosis - Surely, I couldn't be fortunate enough to have a third primary cancer? I must confess that I have always dreaded getting a secondary diagnosis.

    Please keep in touch and let us know how you get on. There is always someone here whenevever you feel like talking. It is often helpful to be able to chat with others who have first-hand experience of what you are going through, rather than worrying family even more. I have never been a good sleeper, but I have real problems since my diagnosis, so I spend the early hours of the morning on this site. no doubt we'll meet here some time soon!

    Thinking of you and hoping that you find a chemo  that works for you soon.

    Kind regards,

    Jolamine xx

     

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     Hi kate, so sorry to hear this news , what you are going through even for you to write this post brings tears to my eyes, you must be a courages women. I am on the waiting list at the moment  to attend the gynaecology department as have had postmenopausal bleeding , also my bowels  are slowely not workingand have been peeing alot more than normal. I had an ultra sound and my cervical lining was at 8.2 , which they like to be under 4 or 5. I havent been diagnosed with cancer as of yet, but thats what they are looking for. I went for a biopsy today and it couldnt be done asmy cervix was closed and scared , and wouldnt open to allow it to proceed, so again i have to wait on that, i have been fulled with dread, and cant seem to stop crying  and i  always though i was a strong women ,but now the moment someone speaks to me i start crying because of being so scared. I also am not sleeping well and am up and down all night, so i can relate to that, and i would love to chat when ever i can with you, take care Barbara.

     

     

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    Hi Kate

    ive just joined and read your story. You are very brave and my heart goes out to you. With young children too. 

    I have stage 4 rectal and stage 1 liver Metz. All the doctors are positive I have a chance to get better hence primary treatment but we will see what CT shows after six. I'm on three this week. 

    I have sleeping tablets else I don't sleep either. I'm happy to chat so will look out for you. We can get through this. 

     

    Daisy16

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