Hello ,
im kate and I'm new to the forum
I decided to join after seeing it on Facebook in the early hours as I'm currently not sleeping .
a little bit about me ... I was diagnosed with her2+ breast cancer on Christmas Eve 2015 , I underwent chemo then had my left breast removed then radiotherapy , and as I'm her2+ I continued with herceptin for the year up to Feb this year
everything and every body in my team was so positive , that this was treatable curable and yes it was a long course of treatment a year out my life but was reassured I'd be ok .... so that's what I went home and told my children , mummy has a lump mummy is having special medicine that will shrink that lump and it will make mummy feel really sick and her hair will fall out but then it will get rid of the cancer and mummy's Drs think it will go away . I know they can't actually say 100 percent but the positivity with that primary diagnoses stuck with me and that's what makes this next bit hard .
Feb 2017 three days after finishing herceptin I get awful pain in top right hand stomach , end up in a and e where they scan me for appendicitis gall stones and or possibly a perforated bowel . What they discovered was multiple liver mets and I'm now stage four incurable at 46 years old
I had kadcyla for six rounds .... after four rounds I became incredibly sick again and scan showed further spread
liver enzymes up so put on steroids to get me well enough to eat and feel better and find me a new chemo regime
currently on my second cycle of cape , havevreduced the steroids to a manageable 1mg a day but my main issue is still sleep ! I've slept 2 hrs max a night in six weeks
so that's me
I have 4 children aged from 21 down to 7 and I remain as positive as I can that I'll be hereby as long as I can
lookingbfirward to chattingbin here in the night with anyone else that can't sleep
mych live
kate
