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Terminal bile duct cancer

Hi,

looking for anyone who has experience or knowledge about this cancer, my husband who is 45 has just found out recently after becoming jaundice that he had bile duct cancer and advanced and spread to liver, we met oncologist last week and said it was probably stage 3 but he said it can't be removed because of where cancer is! So surgery isn't an option, he then said that it os terminal and prognosis with chemo might give  him 6-12 months!!! I can't get my head round it all!! He is fit and healthy, was never ill apart from jaundice!! Any help would be great i.e. Palliative chemo 

 

thanks amy 

  • My dad is the same.  He says he doesn't have any pain but is feeling really ill most of the time. He catnaps a lot . He is on palliative care, my mother is poorly with COPD and a few other things. 

    The nurse said today she was going to see if she can get dad into hospice for a couple of days to sort his pain meds out.

    He isn't eating or drinking very much. 

    I'm scared. I'm the only one of 11 children who helps and works full-time, my kids range from 39 to 17 and are wonderful.

    Nobody however has spoken to me to let me know what to expect. And it's so lonely sometimes. X

  • Hi unfortunately Dad died last night unexpected he didn’t feel well so ambulance was called at 2 pm but all obs we’re fine then at 7pm he couldn’t breath properly and had pain ambulance came and said he had internal bleeding n it was coming out of stoma he was very confused and agitated until they give him morphine  one and half hour lata he took his last breath horrble feel empty and shocked they did say it aggressive last yr and wow it came so fast with a bang see if Macmillan can give your dad steroids to help his appetite and they prob will give him morphine tablets 2 a day cause they use to make Dad catnap all the time stay strong take one day at a time n remember time is precious you just need to sort his pain n appetite and hopefully he will want to go out on Tuesday Dad didn’t go pub and bookies but was out on his scooter all the time I hope your journey is as less painful as possible god bless you and your family xxx

  • Time is precious my dad passed last night and they said chemo could make him go quicker if she has good quality of life and you can gt the pain under control enjoy every moment xxx

  • Hi, my 73 year old mother was diagnosed with pancreatic cancer with spread to liver/lung - around 10 days ago.

    She has also been offered the possibility of palliative chemo, which could give her a few extra months. She terrified of dying and wants to take that option, however I’m worried about her quality of life. 

    Some people tolerate chemo well, but that does depend on their general level of fitness. 

    Its been a bolt out of the blue, as she had no symptoms until she lost her appetite a few weeks ago.

    i don’t have any answers, but I’m in the same boat and wanted you to know you’re not alone.

    Keep in touch here, for support;

    x

  • They said wasn’t fit enough fr chemo but he was good after the asites got drained I said I don’t want him to have chemo n then be ill n sick in bed for the time he has left and the consultant agreed with me enjoy your time it’s hirrible when there scared and you cannot do nothing to help my dad was 71 thankyou your not alone either I’m finding this a comfort now on this site chatting to you x

  • Hi just reading this now i am here with my dad now he been sick not nice plus very chesty. He got diagnosed in March with bile duct cancer plus it has spread. He has been sick on and off went in hospital severe pain had a bad infection.  But he not eating plus trying to give him drinks as well not really having them. You just do not know what to do for them. Its hard watching them like this .

  • Oh no he sounds in a really bad way I'm so sorry to hear this. 

  • I'm so sorry for you loss xx

  • Thankyou it means a lot atleast dads at peace and not wondering is today the day good luck on your journey keep possitive god bless 

  • how’s is your dad doing? Hope things are looking up keep strong x