My cancer story

Hi, I am a 51 year old widowed mum with an 18 year old daughter who has been my rock.

I was first diagnosed with breast cancer in left breast in  June 2015, was told it had spread to my lymph nodes and my cancer was stages 3. Had to have a masectomy and full axilliary clearance (all my lymph nodes removed)..I had problems with fluid collecting in my surgery wound and developed Lymphedema in my chest wall and arm despite doing all the exercises they tell you to do! Not everybody develops Lymphedema so it's just my luck!

Following surgery, after a bit of recovery time ,I started 12 rounds of Chemotherapy which was very tough going as I was quite ill, with sickness, tiredness, chest infections and had sepsis 3 times - my immune system had been so compromised that  I spent quite a lot of time in hospital - the third time was the worst as I could have died because of the severity of it.I spent the whole of christmas and new year in there which was horrible as I couldn't be with my family. I lost all my hair, eyebrows and ladhes which I was hard to deal with as I had long hair and wore makeup but it never looked right without my lashes and brows!

At first I wore a headscarf 'cos my scalp was quite sore and sensitive. I pencilled my eyebrows on and used eyeliner on my eyelids to create the illusion of lashes. I felt a bit like a painted doll but it was better than looking "surprised" !  You can buy stick-on lashes and brows but I find it fiddly so I didn't bother.

I was lucky enough to get a nice wig on the NHS and occasionally when I could tolerate it on my scalp and it felt more comfortable on, I felt so much better looking at myself- I had become so self conscious when everything fell out.

My radiotherapy was delayed to allow my body to recover meanwhile I was started with Tamoxifen which is taken every day. This makes me have hot sweats very frequently so I take Dixarit to reduce them- it really does help.

A month later, now February 2016, I started my 15 rounds of radiotherapy which wasn't too bad,  I continued to do my arm exercises as radiotherapy makes you stiffen up and reduces movement if you don't!

After my treatment I felt kind of lost and isolated, I didn't go out much as my immune system was still weak and I pick up infections easily ( that's just me anyway). Also struggling with bone and nerve pain and chronic Lymphedema. 

I found out about "The Haven" which is a charity for those women who who have/had  cancer. It provides holistic and alternative complimentary therapies and workshops to help sufferers. I found that having a relaxing massage, or acupuncture( to help with sweats) or just talking to someone who understands what you're feeling and going through really helps you on the road to recovery .

Today, I'm still struggling with chronic Lymphedema, pain and recurring chest infections and breathing difficulties but then I do have other health issues as well. In all, I'd say that going through the cancer  treatment was justified and necessary despite the awful time I had and everybody reacts differently to treatment so if you've just been diagnosed and feeling scared about treatment, just remember you're not alone.

I have to say, that I've had absolutely outstanding care  from the NHS, an amazing Oncologist, good caring doctors and nursing staff- both Chemo and radiotherapy staff. I couldn't have had better care if I'd had private treatment. I am eternally grateful to them all and they do an amazing job of helping to save lives every day.

 

 

 

 

  • Hello anni15,

    Thank you so much for sharing your breast cancer story. Sharing the details of everything you have been through including your hair loss experience and the valuable tips you provide will strike a chord with many on our forum. I am sure many who are about to embark on the same journey will be touched and inspired by your words.

    Sorry to hear you have been struggling with lymphedema and it sounds that despite everything you went through, it was all worth it. I am also pleased that you received fantastic NHS care.

    I hope you will hear from others here who have been diagnosed with breast cancer as I am sure they will feel less alone talking to someone like you who has been through it all before and understands exactly how they are feeling at the moment.

    So thanks again for taking the trouble to come and share your story with us!

    Best wishes,

    Lucie, Cancer Chat Moderator

  • Hi anni15 I am sorry to hear that you are struggling with lymphodema it's very debilitating and painful. I was diagnosed in Marc 2015 with lobular breast cancer that had spread to one lymph node. I had total node clearance and radiotherapy and have developed lymphodema in my left bfeast and arm. I was lucky enough not to have to go through chemo. However in March 2016 I was diagnosed with ductal cancer in my right breast whichwas aggressive and HER2 positive. I have had 12 weeks of taxol and am having a year of Herceptin and a mastectomy on my right breast. I feel scared sometimes but try to live each day as full as possible. I am 57 and today am having my mammogram on my left breast again. It's the waiting that's the worst xxx
  • HI i am Hardeep i was diagnosed with cancer in the mouth in october they had to operate within 2 weeks because they did not want it to spread to my chest they took my lower left jae out and lymph nodes in my neck then took a bone from my left leg and repaced that in my jaw .. was in hospital for 9 days then home and hospital for 2 months because kept getting infections . Getting a lot better now . Sorry to hear what you went through. It was lot but do not give up talking to macmillan nurses also helps.