New to forum diagnosed with stage 4 bowel cancer

I was diagnosed in October 2016 with stage 4 bowel cancer which is  inoperable and I have  secondary cancer throughout liver, lungs and testine linings.  Offer of agressive chemo with little prospect of any improvement or shrinkage of main tumour. After discussion with family I took decision to not have chemo but to try and have quality time with family and friends, with prospects of only a few weeks extension of life I wanted to enjoy my time being as strong as I could without dealing with after effects of the chemo. I am 64 years old and desperate to see my 65th birthday in March. I'm married with 2 children and have 4 grandchildren. I have been reading the forum for some time and now just feel ready to talk about it, I would love to hear from anyone at a similar stage, just for genral chat or support.

  • Hi Ninja 9

    Sorry to hear about your wife's recent diagnosis. All I can reccommend at the moment is to live life as normal and enjoy it. It can certainly get you down if you let it - luckily I have always been a positive person and believe in hope. Will see what my next scan shows and may look in to alternative treatments if it has progressed. Keep the Faith - miracles happen and so do surprising results !

  • i  started pallitive chemo for stage four colon cancer in june 2014, continued with breaks till 2016 when treeatment started to give me nasty side effects, when i was told further treatment would only extend expected life for six months, i deciced to end treatment there and then, .from the very start i had ruled out surgery and signed a do not resuccitate  form., since 2016 i have felt normal and no pain, and as i never had any scans since, i have no idea whats happening to the cancer, but as i have no pain, i dont want to know. i was aged 72 when i got the cancer and   am now 77. .

  • That's a good story, gives everyone hope thanks

  • I must admit, it easy to give up treatment when you are older, i understand younger people trying their best to fight it, I just weighted up my quality of life under the treatment and thought it was not worth it, my anti bodies must  be doing a good job, ha ha,

     

  • Hello Davews,

     

    my husband has just been diagnosed with inoperable colon cancer. He has been offered an immunotherapy drug trial to shrink the tumour so that that may be able to remove it. Have you thought of applying for this. It is not as toxic as chemo as your own immune system fights the tumours.

     

    kind regards

    christine

  • My lovely son who is 36 was diag/ with stage4 colorectal C/a with mets in his liver/and nodes with a Braf mutation, he has had his 2nd Folfox chemo and is trying the new avastin which we have to pay for, he was fit and healthy 6 weeks ago sym free, and now his plans and future is very dark.We as a family want him cured to make his dreams come true, to marry his fiancee and to have a family, I have read some of your amazing stories which gives me some hope. Thank you

  • Hi davews,

    I am also 64 years old with stage 4 bowel cancer. Started chemo and had 3 rounds. Trying to buy more time to be with family. My 4 adult children and husband supported my decision to stop chemo. Dearly hope you are still with us because l would love to chat with you.

     

  • Hi Evie and welcome to Cancer Chat.

    I just thought I'd stop by as I noticed you were trying to get in touch with Davews.

    Unfortunately they haven't been on the forum since 2017 so I'm not sure if you will hear back from them.

    I really hope that won't be the case, but if you don't receive a reply you're welcome to reach out to other members on more recent and active discussions you find about this topic, or you can start your own. You can find out how to do this just here.

    In the meantime, if you have any questions about your diagnosis or treatment, our team of cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    We're thinking of you Evie and wishing you all the best with your chemo.

    Kind regards,

    Steph, Cancer Chat Moderator