Being afraid of losing the one you love

My lovely husband was diagnosed with oesophagal cancer 3 years ago. After months of chemo they shrank the tumour enough to operate on and they carried The Ivor Lewis procedure in January 2014. It was a very long and scary operation and he was in intensive care for 3 weeks. When he came home he was traumatised and seemed like a different person. He'd always been the life and soul. Eventually we did get back to some normality but eating and drinking remained an ordeal instead of a pleasure. At the beginning of this summer he started to feel unwell and was struggling to swallow some of the time. A CT scan revealed that the cancer had not returned. He continued to feel wretched and eventually had an endoscopy what which revealed a cancerous ulcer where the join of the operation is. It is inoperable and is now being treated with RT in the hope they can kill it or at least give us some time. It is terrifying and lonely watching someone you love struggle so much and not know how long you have. I already miss the person I loved and feel selfish for feeling that. I am blessed with a loving family and friends but can't bear the future without him. I am signed off work at the moment to look after him but can't do this indefinitely. I know there are so many other people in similar and worse situations but it still,feels so dark and lonely x

 

  • Hello Arabella, i feel exactly the same as you very lonely and afraid. My big sister who is 35 has just been given the awful news her cancer is now terminal and has been given weeks to live. I dont know what to say or do i feel like my heart is  breaking with sadness. She was diagnosed at 30 and has went through alot of chemo. I am also off work due to stress i am worried about my job even tho it feels so silly at the minute with more important issues x 

  • Hi Arabella,  just wanted to send you a virtual hug. My 54 year old husband has recently been told that his cancer is incurable and just waiting for a bone scan to dertermine what chemo he will need to slow things down. We are devastated! I cannot bear the thought of losing him and have to just take one day at a time. We are both still working, but it's a struggle and am not sure how things will go. I also feel very lonely and isolated as although I have good friends they don't /can't possibly understand. My daughters are around which helps but I have to stay positive around them. Feel free to add me as a friend if you feel we can support each other. Sara xx

  • I am also struggling Arabella and SaraJo - and share your pain - and would be happy to share more thoughts- as I feel so scared at times about the future- I have added you both as s friend request if you want to share more- I am still debating with, myself about work – and cannot go back at present as to be separated from my husband at this stage seems impossible- however I know I need to earn money – we have an appointment with the oncologist  tomorrow so hopefully will have some more information as they are suggesting a new treatment plan -  let’s hope it gives some promise. I hope to hear from you soon love Tracey

  • Hi Sara, thanks for your reply, so sorry to hear about your husband. It really is scary isn't it and as much as good friends and family are there for you no one can really understand or say the right things. As you say, one day at a time. We had a good day yesterday so that gave me a glimmer of hope. Its not always easy staying positive all the time and part of me wants to be his his wife and lover again not his carer, its gone on for so long but I feel selfish for thinking like that. Yes I would like to add you as a friend, just not sure how to? Stay strong and keep in touch xx
  • Hi Tracey, thanks for your reply, sorry to hear your news too. It really is so lonely and terrifying.  I also can't face the thought of going back to work and being seprated from my husband but needs must finicially at some point and they have been very understanding.  His treatment finishes tomorrow and we won't know anything until they scan him in 8 weeks time.  I can only hope it does its job and makes him feel better and gives us a bit longer.  Please keep in touch

  • Hello Arabella,

    I am pleased to see you are making some good friends here!

    You can find out more about how to add someone as a friend and use private messaging here.

    I hope this helps!

    Lucie, Cancer Chat Moderator

  • Hi Arabella, Let me see if I can work it out then I will add you. You can then send me a private message if you need to. Xx