Just a note to say hi. Stage IV SCC H&N survivor here. Over 3 years out. Living and loving life in the "new normal". Been there done that so feel free to ask any questions :)
Just a note to say hi. Stage IV SCC H&N survivor here. Over 3 years out. Living and loving life in the "new normal". Been there done that so feel free to ask any questions :)
Hello Stage4Survivor,
It's great to hear from a stage IV survivor! A big welcome to our forum and thank you for bringing your positivity. We hope you will get to talk to others here who can benefit from your experience and who are currently going through what you yourself went through.
Keep living and loving life!
Best wishes,
Lucie, Cancer Chat Moderator
hi. I realise the post is quite old now but I’m wondering how are you doing?
Im hoping you’re still ok
Hi good to know you are really doing well I have a grade3 invasive ductal carcinoma stage two have had wide local incision with sentinel node removal but need to have more surgery as didn't have clear margins then surgeon also said they found another small tumor where the nipple is so i presume they will take it out when they take more tissue I am really scared about this other tumor can you give any advice on this please
Hi
Ive just been diagnosed with stage 4 stomach cancer and I'm terrified.
I was feeling ok until 3 weeks ago apart from a little nausea, but then I lost my appetite and started to lose weight quickly.
I haven't seen an oncologist yet and I hope they get their fingers out soon otherwise I feel I will be too ill for chemo.
Did you lose your appetite and have eating difficulties prior to starting chemo.
Its after 2.30 am. I can't sleep and I need to hear some positivity.
Thanks for being here to talk to.
Regards
Denise
Hi maggyanne,
I was diagnosed Feb 2016 prostate Cancer gone to lymph nodes, spine ribs, pelvis and a lung was classed as palliative care still on the go living normal life had to retire to look after my disabled wife she needs 24, /7 care she has Alzheimers and parkinsons I'm her official carer. Thares loads of others living long lives after operations or just living with an uninvited guest. Like me.. Is that positive enough. Best wishes for the future.
Billy
Hi
Thanks for your answer. I’m hoping I can live with my visitor too. My main worry is that they won’t get me eating again and my weight will continue to drop. I know I need to stay positive but gastric cancer is a really bad one to have.
still stage 4 is stage 4 and I did see one other guy on here who has lived with it 41/2 years. I don’t know if he’s still around. I messaged him but got no reply as yet.
Thank you for taking the time to reply. It means a lot. At this moment my head is just so full of cancer worry. I can’t sleep and I’m already making plans for my family when I’m no longer around. How on earth did you get through those awful first weeks.
Denise
Hi Denise, i know its not easy but try to ignore cancer think and do things to occupy your mind and time and be positive nomatter what, i know its hard to do but cancer wants to win so you have to prove your stronger as [@Chriss] says get some pink boxing gloves on and get in the ring and give it hell.
Good luck and best wishes for the future.
Billy
Hi there ..
So sorry you've had to join our little club .. but the great thing is, we know how you feel .. like you, I thought it was game over with my grade 3 breast cancer .. I spent two days locked away , crying cussing cancer .. planning my funeral ..
My daughter in law, sat me and my son down, and said no more panicking, no more what ifs... we will take every problem as and when it comes up, and we'll do it together... well that was like the old slap we used to see on films .. and I realised no amount of panic or crying will change things .. in fact like Billy said, cancer wants us to lay down and never get up... to just give up .. then it feels so much stronger ..
So yea he's so right ..... l came on here and [@Jolamine] took me under her wing , and once i got all that emotion out , got the pink boxing gloves on .. looked it in the eye .. and I'm still here nearly 3 years on ..
No one knows if they have tomorrow, anyone cancer or healthy could be gone tomoz ... so grab every day .. yea it's scary .. yea it will knock you down .. but it's not about winning or loosing this fight ... it's about giving it a run for its money .. and not waisting a day thinking just of the "what ifs" and if it ever takes me, the last thing I do will stick two fingers up to cancer... it will not change who I am ..
I'm not brave .. I'm scared too .. but I admit how I feel. . Process it's o.k to feel that .. and get back in the ring .. so your amongst friends here .. just trying to do the best we can ...
Chrissie x
My wife has had 2 liver tumours removed plus primary bowel cancer . Both ops done and scan now shows 2 new lesions in the liver and 3 new ones in the lungs . Starts chemo with Fulfox next week . I am desperate for some reassurance or positivity to hang on to from anyone who has had similar experience . Thanks
Hi Phil,
I've sent you a friend request. Hope your wife is better.
It's great that they were able to operate on your wife's liver and chemo may well be able to make the new little uggers lie down. Do you mind me asking what kind of chemo your wife is on? Primary bowel often spreads to the liver but makes it generally operable.
I do think there is hope because your wife was offered liver surgery. I have Stage 4 BC to liver and bones. My cancer is very hormone driven and I am ER, PR and HER2 positive. I am having eighteen weeks of Paxlitaxel, Trasusumsb, Pertuzemab and also Denusomab for my bones.
There are other people on this site who can give you a hopeful thread. Also, do look at Ann Silberman on YouTube, a ten year survivor of BC to liver. I know your wife does not have BC but I always find hopeful to look at other Stage 4 posts.
Ceyenne