Hi EmeliaWS, my husband was diagnosed stage A on 10.11.20 so very fresh for us.  Can you tell me how you are now and how do we move on?  X

Hi All , I am new to this forum so here goes.  I was diagnosed with CLL 16 years ago , I had no idea I had anything wrong with me ( no symptoms) this was just picked up on a routine blood test . At first I had blood tests every 3 months, then every 6 now every year just to keep check on my blood cells . Nothing has changed in all this time . I was diagnosed with grade 3 breast cancer in 2018 and had chemo and Radiotheraphy but all this Never affected the CLL , so hopefully it will stay stable. I hope this reassures you if you are worrying.  Take care. 

Hi there, not sure if you are still active here as it's been a while. 

I was just wondering what level your lymphoytes were at diagnosis? 

Mine have really been a rollercoaster of up and down for 9 years  

3'300 

then up 4'900

then down 4'200 

during 2021 they were between 4'200 and 4'600

The during an infection I saw 8'900 all of those little white cells were up.

at present they are at 5'000

I have not been diagnosed, but, I am alarmingly confused as to how I have not been. 

I am certain the normal highest is 4'000

So my question is what is the count to be dignosed and for how long is it monitored. 

I'm really unhealthy, heavy, type 2 diebetic and all the lovely things that go along with being "obese" as my DR tells me. Oh she is a lovely lady. 

Thanks in advance 

Hi there, not sure if you are still active here as it's been a while. 

I was just wondering what level your lymphoytes were at diagnosis? 

Mine have really been a rollercoaster of up and down for 9 years  

3'300 

then up 4'900

then down 4'200 

during 2021 they were between 4'200 and 4'600

The during an infection I saw 8'900 all of those little white cells were up.

at present they are at 5'000

I have not been diagnosed, but, I am alarmingly confused as to how I have not been. 

I am certain the normal highest is 4'000

So my question is what is the count to be dignosed and for how long is it monitored. 

I'm really unhealthy, heavy, type 2 diebetic and all the lovely things that go along with being "obese" as my DR tells me. Oh she is a lovely lady. 

Thanks in advance