Chronic Lymphocytic Leukaemia

Hi!  I was diagnosed with CLL at the end of November 2015, age 45, and am finding it hard to come to terms with this.  I would be interested to hear from anyone else with CLL.  I am a mum of two young children and am scared to death.

Parents
  • Emelia - I cannot share with you CLL but I can share a fear of death.  And hope.  And feeling better.  And rolling with the crap down days and loving the sparky high days. And nights of nuits blanches as the French would say - white nights sound so much more romantic than going mad in the middle of the night! Perhaps now that you have felt that fear of death - living becomes more vibrant and real and every bit counts?  I have been a lazy cow recently as rain and wind have slashed around - so I went under duvet.  It was good at the time -but did little to uplift my spirits.  I do not have two children to look after so I anticipate your me time is very limited?  What will help and support you?  Sian

  • Hi Sian. Thanks for taking the time to reply to me and I'm so sorry I didn't see your reply until now. I hope you are doing ok?

Reply Children
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