Penile Cancer

Does anyone here have personal or close experience of penile cancer. I have had it, and last year had radical penectomy and groin node removal, then pelvic nodes followed by radio and chemotherapy.  Treatments finished in January. So still only nine months ago.  I wonder if anyone else has been in this position and could let me know how they are doing physically and mentally.  perhaps you are just starting the journey, ask away.. 

Parents
  • Hi 

    I hope you don't mind and please tell if you do . My brother is going through penile cancer . He has had several operations, the most recent a full penectomy . He has been given the devestating news that he has months not years . We have found as a family that he has been left to rot . He now has secondary skin cancer . 8 weeks ago they did a biopsy . They offered no topical treatment ( of which there is plenty ) having read up on case studies this kind of neglect is common place in rare cancers . A Doctor has stated that in rare cancers many treatments are over looked. What I am trying to say to you all is do your research and challenge doctors there are many pathways. Neglect is a strong word but that is what it feels like . 
     

    I wish you all the best in your own personal journeys . 
     

     

Reply
  • Hi 

    I hope you don't mind and please tell if you do . My brother is going through penile cancer . He has had several operations, the most recent a full penectomy . He has been given the devestating news that he has months not years . We have found as a family that he has been left to rot . He now has secondary skin cancer . 8 weeks ago they did a biopsy . They offered no topical treatment ( of which there is plenty ) having read up on case studies this kind of neglect is common place in rare cancers . A Doctor has stated that in rare cancers many treatments are over looked. What I am trying to say to you all is do your research and challenge doctors there are many pathways. Neglect is a strong word but that is what it feels like . 
     

    I wish you all the best in your own personal journeys . 
     

     

Children
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