Penile Cancer

Does anyone here have personal or close experience of penile cancer. I have had it, and last year had radical penectomy and groin node removal, then pelvic nodes followed by radio and chemotherapy.  Treatments finished in January. So still only nine months ago.  I wonder if anyone else has been in this position and could let me know how they are doing physically and mentally.  perhaps you are just starting the journey, ask away.. 

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  • Well David2, there is someone here who is just starting his journey and I think you would be the best person for him to get in touch with. Bramble Bloke is about to have the surgery so I am sure he would be delighted to hear from you.

    You can see post about penile cancer on the forum.

    I hope all is well for you at the moment and a very happy new year!

    Lucie, Cancer Chat Moderator

  • Hi Lucie, 

     

    i have replied and offered any assisitance i can give.. thanks for letting me know .. 

    I had clear scans in Novemeber and back again in March , so far so good. Back to work full time and enjoying a few holidays - been a year this week that i finished treatments - not an easy road but together we can be stronger! 

    thansk and kind regards David 

  • Hi David, I see that you have not been active on the forum recently, but just thought I'd let you know that I was treated for this very rare cancer last year. I have been more fortunate than you as I only needed minor surgery and my lymph nodes are clear. Just hoping it stays that way. Best wishes, Harry.

  • Hi Harry - still around but little activity on here to be honest. Glad things are going well for you .. i am nearly three years  into my surveilence and its all ok. We have a thread on FB if you have access to this. We have a small comunity from around the world a more local too.. you would be welcome to join. 

    let me knwo if you have a fb account. 

    cheers

    david

     

  • Thanks David. And you're doing great! Wonderful to hear. I think I'll give FB a miss as I like to keep a low profile. Happy to post here though because penile cancer is so rare.

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